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SSKParticipant
Hi SSK! Glad to know that your Dad got through the surgery. Greg is right in that your body takes a beating from this surgery. While I haven’t had an
RC I have had other major surgeries including gall bladder removal back in 1988. The doc told me after that surgery I would be as good as new and could eat what I wanted again. Not true. I found that I have a way more sensitive digestive tract and have to watch what I eat especially the combination of carbs, fried foods, acidic fruits etc. I can usually eat those separate from each other but in certain combinations my digestive tract makes me know about it. During and after the BCG immunotherapy my digestive tract acted up too. Some patients that have chemo complain of constipation or diaherrea. BCG isn’t chemo but it affected me the same way. I developed a “leaky gut” but it is slowly resolving itself with good diet and patience. I still think the reason this all came about was because of the gall bladder surgery.I guess the point I’m trying to make is that surgery will have an effect on all body systems and in the case of an RC the intestine was cut apart and it will take time for that to resolve. I hope the docs have tested him for infection because that is a common problem after an RC which he will have to guard against for some time.
It could just be a good old fashioned bug that he picked up in the hospital too. I also suggest talking to the doc about getting tested for c deficile as that is a common infection in hospitals and produces those symptoms. My mother-in-law picked it up when she was in hospital ironically for a stomach issue and ended up sicker because of picking up that infection. Anyone that is weaker than usual has a greater tendency to pick it up.
Great points…thx. He is at the Family docs as I write. The surgeon office suspects it is a virus that was not handled sufficiently last week when he went to the hospital and got his drips….lets see. I will keep you informed and thx!!
SSKParticipantThx for the reply and your expererience…time will tell!!
One thing for others who may insight, my dad have gallstone removed a few years back
SSKParticipantHi All
Just a quick update …….
My dad is now into the 2nd month of his post- op of full bladder and prostate removal.
In the last week he has had severe gas/nassea symptons to the point where he was taken to hospital and put on intervenous. He was vomitting quite a bit. He had intervenous Tues & Wed by a nurse. He went to see his family doctor on Thurs and he is running tests but does not suspect its post surgery complications.
We are confused…has anyone had similar experiences?
Looking for answers
ThxSSKParticipantThx Everyone…. will keep in touch and post after next Thursday
SSKParticipantHi All,
CT Scan came back and the cancer looks to be localized and has not spread. Doc suspects 80% chance that cancer has not spread and now will confirm during final pathology of lymph nodes which will be taken out during the operation next week
SSKParticipantHi folks
2nd Opinion has confirmed original diagnosis. My dad has gone for CT scan yesterday results should be within days. Pre-op tomorrow and Operation scheduled for Feb 14….
SSKParticipantWatch the videos from the Hamilton Patient Meetings…Fantastic
My dad goes for his 2nd opinion at Trillium Queensway tomorrow. Will post thereafter!
SSKParticipantHi all
Thx for the words of encouragement. I think from what I have read and the amount of research my dad has done is that we need to get the CT scan and then asses the situation. everything is moving so quick. we still have a surgery date of Feb 14 in place but need the CT pathaology to really stage/grade the cancer
SSKParticipantThanks Greg for the pros/cons. After speaking with my dad and given his age, he is leaning towards the conduit. He has spoken to 3 ref today 2 conduit and 1 Neo and feels that he can live better with conduit.
CT appt is on Feb 4 @ Trillium Mississauga. The surgeon, I did some research and has good ratings and told us he has done hundreds of these.
Overall, he is in great spirits and really strong. Mentally, I don’t think there is a challenge. Its more us, his family…
SSKParticipantHi all
Went to the Uroligist today and he was very kind and took over 45min to explain what has happened. The tumor is 2.1×1.8x 1.7 and is invasive to the muscle wall so Stage II min. We are looking to book CT scan ASAp to get more details on Stage/grade. He wants to do the surgery to remove bladder on Feb 14 and has given 2 options..1. Bag using 10 cm of intestine into a pouch (stoma) 2. Neobladder
We need to tell him ASAP so he can book surgical time. Not sure which on to go with. My dad wanted Neobladder but does not like the cafether. will search site for pros/cons
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