skip to Main Content
BCC_Discussion-Forum-Page-Header-new

IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

Forum Replies Created

Viewing 10 posts - 1 through 10 (of 10 total)
  • Author
    Posts
  • in reply to: 1st time to site #15371
    SSK
    Participant

    Hi SSK! Glad to know that your Dad got through the surgery. Greg is right in that your body takes a beating from this surgery. While I haven’t had an
    RC I have had other major surgeries including gall bladder removal back in 1988. The doc told me after that surgery I would be as good as new and could eat what I wanted again. Not true. I found that I have a way more sensitive digestive tract and have to watch what I eat especially the combination of carbs, fried foods, acidic fruits etc. I can usually eat those separate from each other but in certain combinations my digestive tract makes me know about it. During and after the BCG immunotherapy my digestive tract acted up too. Some patients that have chemo complain of constipation or diaherrea. BCG isn’t chemo but it affected me the same way. I developed a “leaky gut” but it is slowly resolving itself with good diet and patience. I still think the reason this all came about was because of the gall bladder surgery.

    I guess the point I’m trying to make is that surgery will have an effect on all body systems and in the case of an RC the intestine was cut apart and it will take time for that to resolve. I hope the docs have tested him for infection because that is a common problem after an RC which he will have to guard against for some time.

    It could just be a good old fashioned bug that he picked up in the hospital too. I also suggest talking to the doc about getting tested for c deficile as that is a common infection in hospitals and produces those symptoms. My mother-in-law picked it up when she was in hospital ironically for a stomach issue and ended up sicker because of picking up that infection. Anyone that is weaker than usual has a greater tendency to pick it up.

    Great points…thx. He is at the Family docs as I write. The surgeon office suspects it is a virus that was not handled sufficiently last week when he went to the hospital and got his drips….lets see. I will keep you informed and thx!!

    in reply to: 1st time to site #15368
    SSK
    Participant

    Thx for the reply and your expererience…time will tell!!

    One thing for others who may insight, my dad have gallstone removed a few years back

    in reply to: 1st time to site #15366
    SSK
    Participant

    Hi All

    Just a quick update …….

    My dad is now into the 2nd month of his post- op of full bladder and prostate removal.

    In the last week he has had severe gas/nassea symptons to the point where he was taken to hospital and put on intervenous. He was vomitting quite a bit. He had intervenous Tues & Wed by a nurse. He went to see his family doctor on Thurs and he is running tests but does not suspect its post surgery complications.

    We are confused…has anyone had similar experiences?

    Looking for answers
    Thx

    in reply to: 1st time to site #14870
    SSK
    Participant

    Thx Everyone…. will keep in touch and post after next Thursday

    in reply to: 1st time to site #14867
    SSK
    Participant

    Hi All,

    CT Scan came back and the cancer looks to be localized and has not spread. Doc suspects 80% chance that cancer has not spread and now will confirm during final pathology of lymph nodes which will be taken out during the operation next week

    in reply to: 1st time to site #14866
    SSK
    Participant

    Hi folks

    2nd Opinion has confirmed original diagnosis. My dad has gone for CT scan yesterday results should be within days. Pre-op tomorrow and Operation scheduled for Feb 14….

    in reply to: 1st time to site #14865
    SSK
    Participant

    Watch the videos from the Hamilton Patient Meetings…Fantastic

    My dad goes for his 2nd opinion at Trillium Queensway tomorrow. Will post thereafter!

    in reply to: 1st time to site #14864
    SSK
    Participant

    Hi all

    Thx for the words of encouragement. I think from what I have read and the amount of research my dad has done is that we need to get the CT scan and then asses the situation. everything is moving so quick. we still have a surgery date of Feb 14 in place but need the CT pathaology to really stage/grade the cancer

    in reply to: 1st time to site #14859
    SSK
    Participant

    Thanks Greg for the pros/cons. After speaking with my dad and given his age, he is leaning towards the conduit. He has spoken to 3 ref today 2 conduit and 1 Neo and feels that he can live better with conduit.

    CT appt is on Feb 4 @ Trillium Mississauga. The surgeon, I did some research and has good ratings and told us he has done hundreds of these.

    Overall, he is in great spirits and really strong. Mentally, I don’t think there is a challenge. Its more us, his family…

    in reply to: 1st time to site #14857
    SSK
    Participant

    Hi all

    Went to the Uroligist today and he was very kind and took over 45min to explain what has happened. The tumor is 2.1×1.8x 1.7 and is invasive to the muscle wall so Stage II min. We are looking to book CT scan ASAp to get more details on Stage/grade. He wants to do the surgery to remove bladder on Feb 14 and has given 2 options..1. Bag using 10 cm of intestine into a pouch (stoma) 2. Neobladder

    We need to tell him ASAP so he can book surgical time. Not sure which on to go with. My dad wanted Neobladder but does not like the cafether. will search site for pros/cons

Viewing 10 posts - 1 through 10 (of 10 total)
Back To Top