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January 24, 2024 at 6:53 pm in reply to: Calendar for January 2024 – who is up for Surgeries, Treatments and Tests? #47272
RahaJ
ParticipantHi All, I hope you all doing well.
A little update from my treatment – I’m glad to inform the horrible pain left corner of my bladder has greatly improved due to BCG treatment. Regarding my issue with drinking water, I easily drink 2 liters/day (sometimes more) but only with Naya Natural Spring Water. When I use my regular Selection Spring Water my stomach is full with just 250 ml. Don’t ask me why. I wish I could understand the reason.
Also, I sometimes (mainly after BCG treatment), add Cysto Plus (Sodium Citrate Powder) in the water to help with my very irritated bladder. Cysto Plus Powder can be found on Amazon.
That’s all for me.
January 2, 2024 at 9:03 pm in reply to: Calendar for January 2024 – who is up for Surgeries, Treatments and Tests? #46948RahaJ
ParticipantHello,
I’m currently trying to follow MarySue suggestions. Regarding the pain, it comes from the bladder itself. I always felt like i had a wound somewhere in the left corner of my bladder. Therefore, as soon as I have some urine in the bladder it has to go out due to a sharp pain from that wounded portion of the bladder. Even if I can feel some improvements since the tumor removal in October, that stupid pain is still there. I wish BCG works for me as I’m so afraid of the recommended solution.
Thanks all for your help.
January 1, 2024 at 7:47 pm in reply to: Calendar for January 2024 – who is up for Surgeries, Treatments and Tests? #46928RahaJ
ParticipantHi Marysue,
Thanks for your reply. I will try to do the same even though in my case, I’m afraid it will be a little challenging. I go to the bathroom every 30 to 45 mins after taking a glass of water or even nothing. Not sure how I will stand 2 liters of water, but from your testimony, I understand I have to try this as part of treatment. I’ve been lucky being able to keep the BCG in my bladder for moreless 45 minutes cause the pain was just intolerable. With God help, I’m hoping do better next week. Thanks again for taking the time to respond to my concerns. It’s really appreciated.
December 29, 2023 at 3:22 pm in reply to: Calendar for January 2024 – who is up for Surgeries, Treatments and Tests? #46897RahaJ
ParticipantHello,
I do have a quick question. I did have my first BCG treatment today and have been collecting information from Google. Can someone confirm we necessarily need to drink approximately 3 liters of water after this treatment? I’m sorry to ask, but I don’t see such details on instructions paper provided to me.
Many thanks for your help.
December 23, 2023 at 9:56 am in reply to: Calendar for January 2024 – who is up for Surgeries, Treatments and Tests? #46838RahaJ
ParticipantSalut,
Moi je suis nouvelle sur ce site car mon gentil urologue vient de me faire un cadeau de Noël de très mauvais goût. Alors, je suis un peu désespérée face au traitement qu’il propose. Mais que voulez-vous? J’essaie juste d’accepter que ce corps nous réserve souvent des surprises, autant bonnes que mauvaises. Dans tous les cas, aussi désespérée que je sois, j’espère avoir des bons moments en famille durant cette période festive. Joyeuses Fêtes à vous tous.
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