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January 20, 2015 at 12:30 pm in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18515metalmanParticipant
I dont know what is happening but my Jan 5/15 TURBT stopped bleeding 6 days post op, and now its just started bleeding again, so thats 14 days post op. Being very careful with recovery so don’t know why. Didn’t have this on the first TURBT? Does this sound normal? I will be having my next appointment with the Urologist on Wednesday this week. Very anxious about the pathologist report.
January 15, 2015 at 5:58 pm in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18499metalmanParticipantLeva, Very good ideas i can sure use them. Hope your husband is ok. Families suffer with stuff like this. My wife has collapsed emotionally with all of this. We have both been dealing with sick children for many years. We have two sons with idiopathic liver cirrhosis. The oldests conditon is such that he has been to the transplant team in Vancouver to begin the assessment process. Financially things are beyond exhausted now. My 20 term life insurance expires on tuesday next week and renewal is out of the question. What a dumb time for that, just like what a dumb time for cancer. My mental health is still hanging on but slipping. I have just read this and it sounds pretty crumby. I think depression has written it.
January 15, 2015 at 1:40 am in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18496metalmanParticipantLatest on this continuing ride. Now have a bladder lining infection. Does anyone know how or if this type of infection complicates the healing of the resection? I dont know if the doctor has as much experience as the combined wisdom on this forum.
January 14, 2015 at 4:29 pm in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18492metalmanParticipantThank you Flo, you have taken the time to reply and thatis something in its self.
January 12, 2015 at 3:54 am in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18476metalmanParticipantMarysue, Yes I see there are many things to weigh. I will try to look carefully at the choices as they come. Of all the things to be considered, which can not have a weight itself is your digital typed discription of a hug. Most people in this situation need much more than surgery. Human emotion takes us all for a long rough ride. Thank you for your compassion. For all who are struggling and to their families who stand near, learn the facts but share the hope.
January 12, 2015 at 12:23 am in reply to: After second TURBT tumor is recurrent and now the choice, need any help you can offer. #18474metalmanParticipantI will take someone with me. Appointment is in Victoria on Vancouver Island. I will ask for the pathology report. Thank you for the advice Jack. If there are any other tips out there please send them, even if its how to hold the kleenex when i cry
metalmanParticipantMarysue, Thing are a mess right now. Applied for the disability tax credit on depression grounds but was denied. I resubmitted the appication with the bladder cancer but was denied. Told to start a whole new application. Asked my doctor to fill out the disabilty CPP forms that was 3 weeks ago not done yet have asked him twice since, he feels that it will be denied too. I live in a remote area its 6.5 hours by car to the Urologist for the operation. I visit mental health weekly but there is no social worker other than that. My wife and I will have to sell our home soon or declare bankruptcy. Money is gone, living on credit and that is almost used up. I don’t know what to tell my family to make them smile for Christmas. Doctor will not give me a note to return to work which my employer needs. With bladder pain now I don’t think I can even be there. That’s all I can say.
metalmanParticipantMike, I just read your post. Sounds like you are doing alright. Keep keeping on.
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