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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

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Viewing 15 posts - 1 through 15 (of 16 total)
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  • in reply to: Valar Vesta Test for Predicting BCG efficacy for NMIBC #48621
    marilouc
    Moderator

    Hi Lisautuc,

    They are still in the clinical trials stage.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: 2nd diagnosis #48342
    marilouc
    Moderator

    Hi Tracey,

    I’m sorry to hear that your father’s cancer is back.

    If he would like to connect with our Peer Support Program, I would be happy to match him with volunteers to discuss the different urinary diversions. For more information on Peer Support, please visit this page: https://bladdercancercanada.org/en/patients/get-support/one2one-peer-support/ or feel free to call me at 1-866-674-8889.

    All the best,

    - Marilou (marilouc@bladdercancercanada.org)

    marilouc
    Moderator

    Ce sondage est également disponible en français ici : https://forms.office.com/r/JpXv5ysPE5

    - Marilou (marilouc@bladdercancercanada.org)

    marilouc
    Moderator

    Ce sondage est également disponible en français ici : https://forms.office.com/r/VzrwJjW5SC

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Scan this Thursday, TURBT next Thursday #48266
    marilouc
    Moderator

    Hi DonnaT,

    I’m sorry to hear about your recent diagnosis. I hope you can get more information on next treatment steps soon.

    The following is an excerpt from our website page “Bladder Cancer Symptoms and Diagnosis“: “Depending on the facility and disease status, “Computed Tomography” (CT or CAT) radiological scan may be used. The CT Urogram examines the upper urinary tract (kidneys and ureters) in detail to look for possible reasons for blood in the urine or to detect other symptoms and conditions. A “contrast dye” is injected intravenously (by IV) to better see the internal structures being examined. A CT Urogram will help identify signs of spread to lymph nodes or other organs like the liver.”

    Some other helpful pages are:

    Staging and Grading of Bladder Cancer Tumours

    Non-Muscle Invasive Bladder Cancer

    If you have any questions, or need support, please don’t hesitate to contact me. I would be happy to pair you up with a Peer Support Volunteer or to connect you with a Support Group.

    All the best,

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Traitement TAR-200 #48217
    marilouc
    Moderator

    Bonjour pierremori,

    Merci pour votre question. TAR-200 est en période d’essai clinique et n’est pas encore approuvé ou disponible au Canada.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Vancouver, long waiting for TURBT #48173
    marilouc
    Moderator

    Hi MirelaRP,

    Thank you for updating us. I’m sorry to hear about your recent diagnosis and upcoming surgery to remove the bladder.

    If you would like to connect one-on-one with a Peer Support Volunteer to discuss life with a neobladder, please don’t hesitate to contact me (marilouc@bladdercancercanada.org or 1-866-674-8889). I would be happy to arrange a match for you. You can find more details on our Peer Support Program here.

    All the best,

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: sang dans les urines #48161
    marilouc
    Moderator

    Bonjour Pierremori,

    Je suis désolée d’apprendre cette nouvelle. J’espère que tout se passera bien pour votre chirurgie.

    Notre Groupe de soutien francophone se réunit mardi prochain (le 11 mars), si vous souhaitez y participer. N’hésitez pas à me contacter au 1-866-674-8889 ou par courriel : marilouc@bladdercancercanada.org.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: sang dans les urines #48152
    marilouc
    Moderator

    Bonjour pierremori,

    Merci pour votre publication.

    Il est important d’informer votre médecin dès que possible de la présence de sang dans vos urines afin qu’il / qu’elle puisse en déterminer la cause.

    Si vous avez des questions, n’hésitez pas à nous contacter au 1-866-674-8889 ou par courriel à info@cancerdelavessiecanada.org.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: New UTUC #48104
    marilouc
    Moderator

    Hi Lisautuc,

    Thank you for sharing your experience & I hope everything went well with your cystoscopy.

    We have a webinar recording that provides a comprehensive overview of UTUC and discusses recurrence, available on our website & YouTube channel: https://youtu.be/7Ex17laht5M?si=KkZGG35yo6YbVg1s.

    If you have any questions, please don’t hesitate to contact me.

    Wishing you all the best,

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Exercise Oncology Program #48085
    marilouc
    Moderator

    Bonjour à tous,

    Veuillez noter que ce programme est également disponible en français et qu’une équipe au Québec est en charge de son déploiement! Si vous êtes intéressé(e), n’hésitez pas à envoyer un courriel à wellnesslab@ucalgary.ca.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: New Patient #48032
    marilouc
    Moderator

    Bonjour Guyyy,

    Je m’appelle Marilou et je suis la Coordinatrice bilingue des progammes chez Cancer de la vessie Canada. N’hésitez pas à appeler notre Info Ligne au 1-866-674-8889, de 9h à 17h (HE), du lundi au vendredi pour obtenir davantage de ressources. Il me fera plaisir de vous mettre en contact avec le Groupe de soutien francophone ou un bénévole pour notre Programme de soutien par les pairs UNàUn.

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Information overload or not enough? #47988
    marilouc
    Moderator

    Hi rcs2024,

    My name is Marilou Cameron and I am the Bilingual Program Support Coordinator at Bladder Cancer Canada. I am in charge of our One2One Peer Support Program, which allows you to connect with specially trained volunteers who have also been affected by bladder cancer. These volunteers can offer their unique perspective and help answer some questions you have about the ileal conduit. Please feel free to send me an e-mail at marilouc@bladdercancercanada.org and I will be happy to connect you with a volunteer that most closely matches with your situation.

    All the best,

    - Marilou (marilouc@bladdercancercanada.org)

    in reply to: Ileal Conduit or Neobladder Decision #47966
    marilouc
    Moderator

    Hi Cleblanc,

    I have sent you a private message about our One2One Peer Support Program. Please don’t hesitate to contact me if you have any questions.

    • This reply was modified 1 year, 1 month ago by marilouc.

    - Marilou (marilouc@bladdercancercanada.org)

    marilouc
    Moderator

    Hi BCC Community,

    We are looking for someone who has been treated with the combination of Enfortumab Vedotin (Padcev/EV) plus Pembrolizumab (Keytruda) to share their experience.

    If you have experience with this new treatment, please email me at marilouc@bladdercancercanada.org.

    - Marilou (marilouc@bladdercancercanada.org)

Viewing 15 posts - 1 through 15 (of 16 total)
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