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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: Neo Bladder, night time incontinence and my solution #16752
    Malcolm Fraser
    Participant

    Thanks for the information Al.

    I suffer similar incontinence with my neo-bladder and have thought of trying a condom catheter, with your information I now will!

    Regards,

    Malcolm

    in reply to: Considered opinions wanted #16363
    Malcolm Fraser
    Participant

    Good question Greg! I will address your MIBC #1 with my comments below.

    My reply is based on having a TURP and then a RC within a month.

    Because my diagnosis and treatment all occurred quite quickly, I did not have sufficient knowledge to properly evaluate what my future would bring.
    You hear the word CANCER and only can think, lets do any medical procedure that will lend itself to a cure.

    I had my RC in May, 2011 and since then have thought a great deal about how I feel today having had the procedure and survived for 2+ years with the resulting changes.

    The fact that after the RC I no longer can have an erection and normal sexual relations with my wife has had the greatest effect on me and my relationship with my wife. Had I known how this would all play out, I can quite honestly say that I would seriously have reconsidered having the RC, and living what ever life span I had left in what I consider a normal fashion.

    In other words, life after this procedure (RC), may not be terrific.

    One man’s opinion.

    Malcolm

    in reply to: Radical Cystectomy longer term issues #14112
    Malcolm Fraser
    Participant

    I also have the same problem with naps, occasionally waking up wet. I have a pad on the couch in front of the TV just for these occasions.

    If I empty first I usually can nap for an hour and still be dry, not a 100% but close. We were in Italy this summer and I managed to have short naps on the plane if I managed it properly, of course I wear a pad in my underwear on these napping occasions.

    Thanks for everyone’s comments.

    Malcolm

    in reply to: Radical Cystectomy longer term issues #14101
    Malcolm Fraser
    Participant

    Here is mine:

    1) significant pain in the crotch area since the procedure, am taking pain medication and have attended the pain clinic at St. Michael’s Hospital, physicians say it is neuropathic pain that “might” someday go away

    2) ED as well, this is the most aggravating concern for me

    3) was approaching continence at night without pain medication but with medication I am incontinent at night

    4)certainly lower energy but I do go to a health club and work out regularly

    5) I get up 2-4 times during the night to urinate

    6) bowel function mostly normal

    Life is not exactly wonderful, but better than the alternative!

    Malcolm

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