Forum Replies Created
-
Posts
-
This a positive news, thanks Jack, but it leaves me wondering the difference between using Gemcitabine vs Mitomycin C?
I’ve been cancer free now for 5 years and underwent the common TURBT followed by a single installation of Mitomycin C post surgery.
Would you know the statistical difference between the 47% rate with Gemcitabine vs Mitomycine C?
Ed
Thanks Sophie,
Great read! In speaking with my Uro some time ago about this as a support mechanism for not only treatment but also cancer related anxiety, I was made aware of “vaporizing” marijuana. One of the key negative impacts of smoking marijuana is the combustion aspect and it altering some elements, causing them to become toxic and possibly carcinogenic. Whereas, if you use a “convection vaporizer” (it heats the leafs to the point that they produce water vapor from the plant leaves, but do not burn them) you remove the combustion negative impacts. That in turn provides a “cleaner” intake so that you gain more of the supportive elements of marijuana.
I would partake back in my youth but haven’t touched the stuff since. I often wonder if it would have been a helpful support element during the anxiety periods of diagnosis?
I have my next yearly cysto July 12th. If clear (which I’m sure it will be) it will be 5 years cancer free.
Thinking of everyone and wishing you all well!
xoxo
Hi Wapta,
That’s great news!! I had three 3 month check ups, then moved to two 6 month checks up and have been on yearly ever since.
The worrying and emotional aspects remain for a while, but with each visit they get a little easier in my case. I hope that is the case for you as well.
I’m almost at 5 years clear and will be celebrating my 45th birthday. This site was very helpful for me, don’t hesitate to use it as there are a lot of people here that have gone through the same loops.
Sending my best!
Ed
Hi Wapta,
I’m sorry to hear about your diagnosis. I was 39 when I was experiencing some slight urgency followed by some burning during voiding and eventually clots. I had undergone three rounds of antibiotics as my GP thought I had an infection, but after three rounds it was clear that wasn’t the case. I asked for an ultrasound and after that, everything moved pretty quickly! Before I knew it I was seeing my newly assigned urologist and found myself undergoing a Cystoscopy, followed by a TURBT a few months later.
In short they found a low grade, Ta stage tumour next to my left ureter. After surgery and a single dose of mitomycin C, I’ve been cancer free for almost 5 years.
Much like you I eat well, workout, sleep enough and would regularly be considered a healthy and fit person. It was a surprise, especially at my age.
Do let us know how your follow up goes and we’ll be sending positive vibes your way and if you have any questions, don’t hesitate to reach out.
Sending you my best.
Thanks Mary Sue!!!
I have my cysto July 13th. Hoping its my 4th year cancer free!
Wishing all the best to everyone!!!!
Welcome to Bladder Cancer Canada Rosie!
The club we are all thankful for but rather wish we hadn’t had to discover it!
I was 39 when I started showing some symptoms and had my TURBT days after my 40th birthday. It was a very lonely and scary place for me as well (like all that are impacted) but, like you, I came across BCC and all my questions were answered. I personally find knowledge to be quite empowering and it helped me get through the process. I”ve been cancer free for 3 years and counting. Next follow up is this summer (yearly) and I expect it to be the same.
Ask as many questions are you need, there are a lot of very knowledgeable people here that have gone through it all.
Sending my best
Eddie
Hi Lynn,
I’m 43 years old now and was originally diagnosed with a Ta Low Grade 2.7cm tumor just three weeks before my 40th birthday. Like you I took care of myself, exercised (still do) regularly and lived what is considered a healthy lifestyle. I’ve been cancer free for over 3 1/2 years after my TURBT and single chemo dose.
It was on my mind all the time and was quite worry some. The fine folk at BCC helped answer my questions and gave me a better point of view. I have moved to yearly check ups after the initial 3 month to 6 month follow ups.
To date, its been going very well.
Ed
I had a good laugh at this! Must be us engineers, or in my case former engineer.
Thanks for the laughs DDep
Hi GM,
Jack pretty much sums it up. A chat with your Uro would be a good idea.
I was diagnosed with a Ta stage low grade tumour and had a TURBT and a single treatment of Mytomycin C shortly after surgery. Otherwise I haven’t had any other treatments to date (over 2 years and counting). My tumour was 2.7cm in size. Your Uro may feel that you do not need further treatment, but best to chat with them and understanding their views.
Ed
“Motorcycles don’t’ have doors?”
I completely cheated and looked that up! But what does that answer even mean? Perhaps I’m being too literal and logical to truly appreciate what is being said? Or, perhaps my mental prowess is on the decline?
In any case, I will add one point that stands true…always! KIOWA….”YOU BAFFLE ME WITH YOUR RIDDLES”
Hi Richard,
In your case I would highly suggest you follow with Jack’s advice (posted shortly after your initial post). If you contact BCC via the phone number at the top of the website, they will very likely be able to provide you contact details for other doctors at a major cancer care centers and /or teaching hospital.
Eddie
