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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

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  • June 3, 2024 at 11:42 am in reply to: Calendar for June 2024 – Who is up for Surgeries, Tests and Treatments? #47705
    Bren
    Participant

    I am having my 6 month ct, post radical cystectomy, June 10.  I think a person is always on edge when you’re due for a follow up test/scan.  I’m certain I will have a clear ct but it still weighs on my mind and of course any little or big aches is always something sinister.

    June 8, 2021 at 11:57 am in reply to: Calendar for June 2021 – Who is up for Surgeries, Tests and Treatments? #41688
    Bren
    Participant

    I had my cystoscope last week and all clear so I can continue with my 2nd maintenance in a few weeks. I have scar tissue blocking my left ureter from previous Turbt so will have a stent until my treatments are all done. He replaced the stent last week with no problem and will replace every 3 months with regular cystoscope.  I have HG non invasive and have had 3 recurrences in 2 yrs so have been told that if it returns again I will probably need a cystectomy. Fingers crossed!

    May 7, 2020 at 12:14 am in reply to: Calendar for May 2020 – Who is up for Surgeries, Treatments and Tests? #38455
    Bren
    Participant

    I had my scope today after 5 of 6 BCG treatments. I ended up on antibiotics so couldn’t have the last treatment. Scope was clear!!  I will start my 3 maintenance treatments in a couple of weeks. This was the best news news I’ve had in a year.

    January 16, 2020 at 8:49 pm in reply to: Recently diagnosed scheduled for 4th turbt Within 5 months #37618
    Bren
    Participant

    My urologist called with pathology results. The carpet like recurrence is non-invasive but high grade. I will start BCG treatment in a couple of weeks. Does anyone have any links that I could read up on what to expect, etc with BCG. does it burn when it’s put in the bladder, side effects, etc. Once again, thanks in advance.

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