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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

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Viewing 7 posts - 1 through 7 (of 7 total)
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  • in reply to: 6th and final (for now) BCG installation #34764
    Bladderboy
    Participant

    Hi rob1234, here’s hoping you get positive results. And good to know that the side effects may not be that bad after 6 BCGs. I’ve just had my 3rd and so far, touch wood, the side effects haven’t been too bad. I try to go the the gym about 3 times a weeks and just do what I can. I find this helps with my general health and mental status. All that and drinking half of one of the Great Lakes.

    in reply to: Recovery Time after TURBT #34763
    Bladderboy
    Participant

    Hi Floger, stay positive and keep thinking that way. I had 2 TURBTs ,the first to remove tumours and the second to go back in after the path report. Luckily the second found nothing. However I ddI have a blockage and had to return to hospital in an ambulance and spent the next 2 days on irrigation. Not an experience I want to repeat. Recovery time to start doing exercises will most probably depend on age and general health and fitness. You can never drink enough water. I was at least 4 weeks before I could do more than a 15 minute slow walk. After 5 weeks I started back at the gym (no weights or impact) and slowly getting back into it. I’m now walking for 45min+ every day and going to the gym 3 times a week. I find it does my general fitness and health good along with my state of mind. It’s important to have a positive outlook. I’ve just had my 3rd BCG, so far not too many side effects. Fingers crossed. Good luck with the follow up and BCGs.

    in reply to: BCG failed #34762
    Bladderboy
    Participant

    Hi MickT, Happy for you that it was caught. Hopefully the 3rd TURBT will be it. I’ve had 2 in the past several months and I’ve just had my 3/6 BCG. Thanks for the useful information. All the best and keeping drinking that water.

    in reply to: 1st BCG Treatment…………. #34708
    Bladderboy
    Participant

    I had my 2nd BCG  today, and feel alot better than the first one.

    After the first one, I managed only 1 1/2 hours. The nurse told me to try keep it in for 2 hours. About 3 hours later, it was like a sudden flu. Took Tylenol and went to be. I was fine the following morning.

    This week, I managed to keep the BCG in for the full 2 hours. Very proud of myself I am. I took Tylenol when I got home (something that someone on this site recommended) and I think it helps. I feel tired, but not like flu. Also, I drank alot of water.

    Bladderboy

     

    in reply to: 1st BCG Treatment…………. #34490
    Bladderboy
    Participant

    I have my 1st BCG today. I appreciate all the comments and I think I’m fairly prepared, although I don’t think I’ll ever get “used” to having a catheter. I’ll be back with my experiences. Fingers crossed.

     

    in reply to: 4th BCG installation…………………. #33926
    Bladderboy
    Participant

    <p style=”text-align: left;”>Hi, thanks for the responses. Link and personal stories were very helpful. I guess I just have to wait until they call me and live my life to the full.</p>

    in reply to: 4th BCG installation…………………. #33916
    Bladderboy
    Participant

    Hi Rob (or anyone else who reads this),

    I have just read your posts and I thank you. I just found out today that I will have BCG treatment. Probably starting in a few weeks. I guess I will get more information when I go for my first treatment, but in the mean time if  you don’t mind I have a couple of questions.

    Any tips before going for my first treatment? When should I stop drinking before? Is it important? Can I drive after the treatment or do I need to have someone with me? Are there any restrictions on travel?

    thanks

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