Forum Replies Created
-
Posts
-
Hello everyone
It certainly has been awhile for me. I hope everyone is well. Stephen is doing well. He has finally received a clear scope since this has all began. This is a first for him so he was excited by the news. His surgeon however rained on our parade and did caution not to get too excited. We will take it for now. The BCG did not seem to be overly successful for him so he was given another form of chemo which was injected right after surgery. This is also the first time there have been no cancer cells showing in his urine tests as well. So for now great news and we will await his next 3 month appointment. His doctor is also keeping an eye on him as he has had tumours in the urethra on his last 2 removals. But we are happy with his course of treatment and very happy with the surgeon. LouiseHello to everyone. I hope all is well. Stephen had his 6 Bcg treatments. His scope after ended up with 5 more tumours. This past Friday he had those removed and was given a chemo treatment right after. He now has his appointment with the surgeon next week for the pathology results. I am guessing he will be having another round of treatments. We are trying to stay positive but I know for him it has been discouraging with not yet having a clean scope since all this began. I will keep you posted on his journey.
Good day to everyone.
My husband has completed 6 rounds of BCG. He came through them with very minimal side affects. He was tired and the last 2 treatments had some burning. So now scope in 2 months and see how the treatments helped if at all. He has never had a clear scope so we are thinking it would be nice to get one of those for a change. On February 12th we welcomed our first granchild. Ava was born weighing 8 pounds. Now it needs to be said she is the most beautiful child we have ever seen.Thank again for all the information. I am taking him to his first treatment and he has booked the days off work. He had his shift switched to afternoons and he feels that will give him extra time the next day. My brother in law is going to drive him to his remaining treatments as he just retired. We have a list of questions for the nurses but thought I would ask here as well. My husband is concerned about tb and others. His main concern is our daughter is having our first grandchild in a couple of weeks. Is this something he has to worry about he doesn’t want to put her at risk. Is it just for the day or is it during the entire treatment period we have to worry about this? I know they give instrutions on the bleach etc. He is just concerned. Louise
Thank you everyone for the information. I am glad that there are people out there to help with questions. It is a long drive to be doing alone for sure. We are learning something everyday it seems. I will show him the information so he knows what to expect. Thank you again without this site I would be lost. You are all great people. Louise
Hello everyone
Hope everyone had a good holiday. I have a question regarding BCG treatments with my husband. He is beginning them next week. He is scheduled for one a week for 6 weeks. When we met with his surgeon he said he could drive himself to them and could go to work after them. Is this reasonable to think he could? Also we forgot to ask does he stay for the two hours or does he leave after he is injected. We never thought to ask that. My concern was he has an hour and half drive and I am concerned about him driving. The surgeon said it shouldn’t be a concern. Any thoughts or advice would be helpful. Thank You Louise
It has been a bit since I have posted. Hope all is well with everyone. My husband had his tests and the cancer has not spread. That was good news to hear. He begins BCG treatments in January. He will have 6 and then a scope after treatments. We were relieved to hear it had not spread to the kidney. I would like to thank everyone on this site as I fear had I not stumbled on this site I am not sure where his treatment would be. Now being at a major center the care and knowledge makes us feel more secure in his care. So thank you again to all. I hope everyone has a Merry Christmas and Best in the New Year. We will be welcoming our new addition in February which is quite exciting for us. A first grandchild welcomes new beginnings. Louise
It has a been a bit for me checking in. My husband had another tumor removed but this time on the eurethra. The surgeon took extra as he was unsure if it has spread up it. it turns out the pathology showed there was cancer in there as well. He is doing another test to see how far up it has travelled if at all and then we will know our next step. If all goes well he will begin BCG treatments immediately. If not it means more surgery. Our new surgeon is great and we have great confidence in him. He always goes with the side of caution. So as soon as he has his test for that we will know how he will proceed. Hope all is well with everyone. Will keep you posted. Louise
Thank you to everyone. We travelled to Toronto to Toronto general and got a second opinion. The specialist was great and explained everything in detail to us. We sure learned alot from him. He is willing to take my husband. So yesterday he performed his own scope and tests. My husband has more tumors since July so we are travelling there for him to remove them. He will then begin BCG treatments from there. It was nice to see a doctor who explained everything and answered all of our questions. He feels my husband definately needs the treatments based on his prior pathology results. He was even nice enough to see if he could arrange treatments closer to our home so we don’t have to travel. It really isn’t that far but factor in good old traffic and it sure adds to your time. I thank God for this site and the people that post on it. Without it I am afraid we would of just kept on going the way it was going not very informed.
And just to share we are going to be first time grandparents which is exciting. I can’t wait for that. I will keep you up to date. LouiseI would like to thank everyone for the comments and advice. We are getting a second opinion. My husband has an appointment on Thursday in Toronto with a specialist. His family doc feels the second opinion is what we need. Jack was helpful to us and we now at least understand the results. I am so glad I found this site. Everyone has been supportive and thank you. There is so much helpful information on here as well. I will let everyone know what this specialist has to stay. He is up to date on all treatments and does specialize in cancer of the bladder. Louise
Thank you everyone for the support. My husband and myself have learned more from this site than his own doctors. I have got a copy of both reports now so hopefully Jack can help me. I have emailed them to him. We were also wondering my husband experiences alot of fatigue. Is this common with bladder cancer? His doctor has done some more testing of blood checking for anemia and thyroid etc. Louise
