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Homepage – Forum Forums Metastatic Bladder Cancer Wondering if any men are experiencing scrotal pain and burning penis

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #47044
    Kellykilby
    Participant

    My husband has stage 4 bladder ca spread to bone.. for longest time he’s been having burnng sensation at tip of penis .. when this happens it kind of is an indication that he has to go towards bathroom .. we’ve mentioned this to all our drs and they have no idea.. now husband is having pain in scrotum.. ultra sound and xrays haVe been done showing nothing.. if any men know what im talking about pls reach out.. he has ileal conduit so no bladder nor prostate.. ty

    #47057
    SJay
    Participant

    Kelly

    Hopefully they checked his white blood cell count to see if there is an infection.

    #47085
    Kellykilby
    Participant

    Hi SJay,
    Oh yes they have.. he actually just out of hospital after 9 days major infection.. chemo wiped out his blood count.. but this burning been going on pretty much since after his surgery in feb 21… no dr can explain it.. i thought maybe some guys out there may have experienced this .. we just never persued it but its becoming a problem for him now.. maybe a nerve.. hopefully will soon get answers.. thank you so much for your reply.. kelly

    #47059
    Nightingale
    Keymaster

    Hi Kellykilby,
    I am a 13 year survivor. Approximately, 3 to 4 years ago, I noticed a burning sensation when I urinated (I still have my bladder) and realized that I had let my blood sugar level rise to pre-diabetic levels. Has your husband checked his blood sugar level to see if they might be too high?

    My Best,

    #47113
    Joe
    Participant

    Hi Kellybilby,

    Since various imaging diagnostics did not find any abnormality which might be causing the pain and your said doctors could not find the cause,  I am giving an educated guess.

    Your guess “nerve” may be one of  the suspects.  I see some patients (not many) posting pain in scrotum after the surgery of radical cystectomy, a  I also found an clinical case, that doctors searched for the cause of the pain by way of eliminations and still could not find the cause, so the doctors r assumed it might be caused by nerve during the surgery.   So, the patient was  prescribed medicine to treat  neuropathic pain and the pain and allodynia were partially and gradually relieved.  So, I describe those cases in detail.

    During the surgery of radical cystectomy, the surgeon removes bladder, prostate and pelvic lymph nodes.   Bladder and prostate position right next rectum, seemingly acting like wall the one side of rectum leans on.   I interpreted what you described your husband condition this way.  Please correct me if I am wrong.   I think when stool fills up rectum, rectum distends and that movement might be triggering something to cause the pain in scrotum and penis because your husband does not have pain usually.   I have very little knowledge on nerves existed in pelvic so I cannot comment on it, so I describe what cases mentioned before in detail.

    There is a clinical case reported in 2016 by Nagasaki University School of Medicine in Japan. 

    Title A case of scrotal pain associated with genitofemoral nerve injury following cystectomy.

    The genitofemoral neuropathy is one of the most common causes of groin pain after surgery. Especially, the groin pain induced by genitofemoral nerve injury during herniorrhaphy is a well-known complication. In contrast, much attention is not paid for groin pain induced by genitofemoral nerve injury after pelvic surgery, and there have been few reports in males, although it has been reported in females. We report a 59-year-old male patient who suffered from scrotal pain caused by presumed genitofemoral nerve injury during radical cystectomy and bilateral pelvic lymphadenectomy for bladder cancer. The surgical procedure was performed in a supine position under general anesthesia, without epidural anesthesia. Postoperatively, he complained of burning and lancinating pain in bilateral scrotal area. Abnormal findings were not evident using computed tomography and ultrasonography of the pelvis, including the scrotum and testicles. He had severe allodynia of the ventral scrotum and bilateral ventromedial thigh region, with absence of cremasteric reflex. We speculated that his pain might have been surgery-induced genitofemoral neuropathy, which was caused by nerve injury during lymphadenectomy near the external iliac vessels. His scrotal pain and allodynia following the cystectomy were partially and gradually relieved after administering pregabalin, further supporting the contention that his scrotal pain was a surgery-induced neuropathy

    Wikipedia says the genitofemoral nerve arises from the lumbar plexus. It supplies sensation to the skin of the anterior scrotal area in males and the upper segment of the anterior thigh.   The author is saying that it was speculated that the genitofemoral nerve when the surgeon removed lymph nodes near the external ileac vessel.   There are right external ileac lymph nodes and light external ileac lymph nodes which are removed in radical cystectomy.   This is one possibility.  The report says also the patient had severe allodynia of the ventral scrotum and bilateral ventromedial thigh region, with absence of cremasteric reflex.  Sounds like the patient had scrotal pain when scrotum was touched and even under thigh either side was touched.  The patient was prescribed pregabalin.    The report did not mention that the patient also suffered from pain in penis.    If I understood report correctly,  CT or ultrasounds cannot detect if nerve has been injured.

     

    Patients experience posted in forum

    Case 1 Posted in 2012

    The patient had his RC in September 2010 and still have pain in the lower right groin. First it was presumed I had epididymitus (swelling of the tube on the testicle) caused by an infection. They then decided I did not have an infection and it was a benign condition. However, I still have the pain, and sometimes it can be quite severe. Like others, I’ve been told it can last for a while (years) until all the nerves heal.

    Case 2 Posted in 2012

    The patient had my RC and neobladder done nine months ago and still have pain in crotch area and lower abdomen. I have had it investigated by my Uro and he told me it is probably nerve pain. When our prostate and bladder is cut out, quite a few nerves are cut doing it, which may result in ongoing pain in the area. I only hope that over time it will reduce in intensity. I do not take anything for the pain, except the occasional Tylenol. It has been difficult to adjust , but we have little choice but take as positive a view of it as we can.

     

     

     

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