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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

Viewing 13 posts - 1 through 13 (of 13 total)
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  • #8202
    Tanya
    Participant

    Hey Everyone!!! I hope your day is going amazing and everyone is feeling optimistic about their upcoming checkups, surgeries etc! I have my first cysto since chemo happening on March 31! I have to be honest, i am feeling a bit nervous! Fingers crossed the chemo did the trick and i am all clear!!!
    On a brighter note, i am getting so excited about our very first BCC Walk here in Sydney, NS!
    For all members of this group who may be living in the area and/or surrounding area or know of anyone in relative location, please connect them with me as this event is going to be a fun successful event in hopes to grow grow each year as we spread the word!!!!
    Happy Friday, enjoy your weekend!
    Much Love
    T

    #18725
    elsie
    Participant

    Hi Tanya
    Good luck for your cysto….. Which will be “ALL CLEAR,!”
    Hugs
    Lynn

    #18726
    Babs
    Participant

    Hi Tanya
    I can sure relate to the trepidation pre-cysto. To normalize my reaction I remind myself of friends who are many years post Ca diagnosis who still get a little worried prior to their annual checkups. I wish I had inherited my elder brother’s personality. He is a prostate cancer survivor & truly never worries about anything. But we are all unique and must learn to manage our individual psychological traits.
    Your upbeat approach to life is so refreshing & inspiring.
    I have my fingers crossed for an “all clear” for you on the 31st. Also wishing you much success with your Walk.
    Bette

    #18728
    Jack Moon
    Keymaster

    Wishing you good results on the 31st Tanya.
    All the best,
    Jack

    #18729
    Rick B
    Participant

    Hi Tanya,

    Here’s to All Clear…the pre-cysto nervousness is very normal.

    Best wishes and thoughts for a favourable outcome.

    Rick

    #18745
    marysue
    Participant

    Hi Tanya: Best wishes for an “all clear” tomorrow! Let us know the results!

    #18754
    Tanya
    Participant

    THANK YOU so much for your lovely comments and positive vibes. Todays follow up was not what I was hoping for but I remind myself it could always be worse. My urologist is awesome, I have a great family support system and no matter what need to find the positive and something I can be grateful for in this situation…..5 new (small tumors) post 6 chemo rounds. I will need another surgery and another 6 rounds of BCG. What is everyone’s thoughts? Should I be really worried?
    Much Love
    T

    #18755
    marysue
    Participant

    Hi Tanya:

    I had a TURBT in 2008 followed by 6 BCG. I was clear for almost 2 years and then a small tumour was found at a cysto check. I had a second TURBT followed by 15 more BCGS and have been clear for going on 6 years. My take is yes, be concerned but ask your doc about how he views your risk factors and go with that since you have good confidence in your uro. It does take time for treatment to work in some people. Reoccurrences are common even during active treatment. Bladder cancer has a 50-80% reoccurrence rate. Hopefully the second TURBT and follow up treatments will do the trick this time. Best wishes going forward and keep us posted. (((((HUGS)))))

    #18756
    shelties
    Participant

    Hi there Tanya, from one Nova Scotian to another, I hope your next rounds of BCG do the trick for you. Its’ great to hear that you have a lot of confidence in your Urologist. That means so much when on this journey called Bladder Cancer. I don’t know about being worried, worrying doesn’t get us anywhere, but cautious is always good because we need to be vigilant in keeping track of what is going on with our treatment. It is certainly a roller coaster ride for sure, and most of us would not choose to be on it, if we had a choice. Good luck with your next surgery and BCG treatments that will follow. Keep us posted on how things go for you. Above all, be kind to yourself as you go through this next round.

    Take care.
    Lorraine

    #18761
    Jack Moon
    Keymaster

    Hi Tanya

    Sorry about the recurrence. I had 2 recurrences between 2006 and 2007 during treatments. Finally the 3rd set of BCG treatments worked and I have been all clear since 2007. Stay positive, sometimes it just takes the treatments a few times before your immune system gets the needed boost to fight off cancer cells.
    I do recommend you get a copy of your pathology report following your upcoming Turbt.
    All the best,
    BCG =Bladder Cancer Gone
    Jack

    #18769
    Rick B
    Participant

    Hi Tanya,

    Sorry to hear about the recurrence however it is not unusual. Like others, I too, had recurrences (2) and was treated with BCG each time following removal of the tumors. Your Urologist seems on top of everything and with a plan..that’s good. As Jack suggested, getting a copy of the path report and perhaps help, if you need, with understanding what it means is a really good approach. Stay strong, stay positive and above all, Believe you can beat this…

    Prayers and thoughts for the best outcome…keep in touch…

    Rick

    #18773
    charbarry
    Participant

    Good Morning Tanya,

    Another Nova Scotian here-
    Sorry to hear of your recurrence, always disappointing news. I also found out at yesterdays cysto that I have two new tumours, with surgery on the immediate horizon. Had to see a new urologist ( mine is out on medical leave, prostate cancer), so was extra nervous. I am so impressed with the new doctor, completely at ease with him, always a great thing. So glad you have a urologist that’s awesome too! Does it take long to have surgery scheduled there?
    At least it’s April, surely the snow will soon stop- we still have FEET of it, as I’m sure you do there- always something good to look forward to, lol.
    Thinking positive thoughts!

    Charlotte

    #18774
    Jack Moon
    Keymaster

    Good luck with your upcoming cysto Charlotte.
    Jack

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