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Homepage – Forum Forums Non-Muscle Invasive Bladder Cancer Turbt extreme pain, recurrence same spot

Viewing 7 posts - 1 through 7 (of 7 total)
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  • #8553
    Greg C
    Participant

    Hi All

    I just had my 2nd turbt yesterday for a recurrence in the exact same location. I have extreme pain in the bladder toward the end of urination that lasts 15-20 minutes then settles down. Pain is slightly relieved with Percocet. Is this normal? I am not having any trouble passing urine nor is there any blood today. The Uro said he had to dig deeper for removal of tumor. Any one else go through this amount of pain and how long before it should subside? Also concerned that the recurrence being within 3 months and same location being an indicator of an aggressive tumor. Found that on Medscape website that seems to have a wealth of info. Also dealing with prostate cancer and severe spinal issues. I am 61 and have to say there is nothing golden about the golden years. Thanks to all that are here.

    Best Regards
    Greg

    #21943
    Jack Moon
    Keymaster

    Hi Greg
    I did have a lot of pain in the bladder toward the end of urination after my 1st Turbt. This lasted for about 5 days but did get better each day. The pain meds did seem to help with me also. Medscape does have a lot of good information but the pathology report will indicate the type of tumor, depth and grade. My 2nd turbt the small tumor removed was very close to the area where 1st Turbt was done, but was low grade. Hopefully yours will be the same.
    Insure to get a copy of the pathology report from your Uro when it is ready.
    All the best,
    Jack

    #21944
    DDep
    Participant

    Greg C,

    During my three month follow-up Cystoscopy, I had, what looked to be a “tumor” detected at my first TURBT site.
    I then had another TURBT to remove the suspected “tumor”. Much like you posted, my Urologist went “deep” during the Resection in order to “get it all”.
    I had a Folley Catheter for a week because of the depth of the Resection. There was some pain and discomfort although the bleeding was gone after less than 24 hours. I took the prescribed pain killers as necessary.

    As Jack Moon has said, you really have to wait for the Pathology Report.
    In my case, the “tumor” was benign (not cancer at all).
    I hope your case will be similar.
    Please do not get ahead of yourself !

    God Bless

    DDep

    #21955
    Greg C
    Participant

    Thank you both for your reply. The waiting for the path reports are stressful. From what I have read my situation is a concern. I was a heavy smoker for many years and did work with a lot of bad things in autobody. I have no one to blame but
    myself for my poor health choices. I hope its not a case of too little too late.

    #21956
    DDep
    Participant

    GregC

    Waiting for the Pathology Reports were amongst the most stressful times for me. It was something I had to overcome.

    I had to try to learn not to worry about the “unknown” and only live with, and deal with, the things I know about. In that regard, being diagnosed with BC was a blessing – It gave me a gift.

    BC is a funny thing. I never smoked. I am well educated and I worked in an office. I am active. I have not been exposed to “chemicals”. I got BC.

    Even though you are concerned with your life history and how it may have influenced a tumor, it does not mean that your situation is not curable !

    So, I know the waiting game is difficult. We have all been there. You are not alone in this. Once you get the Pathology report, you will be in a better position to move ahead.

    One more thing. About 70% of BC present as are Non-Muscle Invasive Bladder Cancer (NMIBC). There is a very high success rate in treating NMIBC with Immunotherapy or BCG. So, the odds are in your favour.

    God Bless

    DDep.

    #21958
    marysue
    Participant

    Hi Greg:

    I say “ditto” to what has already been said. I found the waits for pathology test results the most stressful of my entire life. We feel that our life has stopped while the rest of the world continues to turn and move on without us.

    I too, tried to delve into the how and why of me getting bladder cancer. I have concluded that while I never smoked, I was exposed to a lot of second hand smoke while growing up and in the work place for many years before it was finally banned. I was also exposed to a lot of chemicals and pesticides growing up in a fruit growing area. The farmers would let loose with sprays while we kids were riding our bikes through their orchards. No one knew of those dangers in the 1960’s or 70’s. Was that the cause of my bladder cancer? Quite possibly but I don’t think that I’ll ever know for sure.

    I also delved into reading about some New Age type thinking into the metaphysical realm of things wondering if my past negative mental attitude could have been a factor. Again, who knows?

    I have stopped worrying about it simply because I can’t change what happened. I can only go forward and have resolved to do that as best I can. Thankfully after 2 TURBTs (tumour removal surgeries) and 21 BCG immunotherapy treatments, I’m eight years cancer free. I try my best to live as healthy a lifestyle as possible with a decent diet, exercise, rest, taking some vitamins and doing yoga and acupuncture. I do what I can to build my body’s defenses against a possible recurrence.

    It is what it is. It isn’t a very nice cliche, but it is what applies here. I just go forward thanking God every day for a new opportunity. It takes time, but learning to let go of the fear goes a long way in dealing with this disease.

    Best wishes for positive results and going forward. Please stay in touch and let us know how it goes. (((((HUGS)))))

    #21961
    Greg C
    Participant

    Thank you DDEP & MarySue. It is wonderful to have folks like you that we can talk to. I know my mood has been all over the place. I got diagnosed with Bladder and prostate cancer last October. The first couple of weeks were frightening, then I got to a place of acceptance as this being my new normal. All was fine until May of this year when my spine turned bad to the point of being bed ridden for a month. I need spinal surgery. I can’t even entertain that with the cancer issues right now. I have gone from living a 10 down to a 1 trying to get back to a 2 or 3. Being very limited I now have too much time to think. At least before I could keep busy as we have a nice Country property that I looked after with great pride. I have been so dependant on my brother and friends to keep things going, hence the reason for my increased fears. I’m dealing with all three and find it hard to be positive all the time. My darling Wife has been amazing but it is taking a toll on her too. I guess all we can do is pray and hope for the best.

    God Bless you all

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