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Hi to you all….been awhile since I was on this site…Had my RC on April 12th, surgery went well…no complications..thank goodness !! Oh but wait…till I come home….Spent 2 weeks in Edmonton..things went well..trying to accept the “new normal”..one day at a time!!!!
So come home from hospital and 4 days later..to what I thought was a muscle spasm in my back…got a little more intense…then to the point I couldn’t breathe..now we are in an ambulance headed to the hospital here in Red Deer…wow…don’t remember the first two days at all…then when I did come back to the real world. mom informs me that right lung had a few clots….called PE….holy shit that was a trip to hell and back!!!! Having the RC was nothing compared to these clots!!!!! So spent the next week on bed rest!!! and lots of pain meds..which was a good thing…I slept a lot which was the best thing!!!! So spent another 2 weeks in the hospital..so home now…feeling a whole lot better. Mobility is getting a little easier and not so stressful.
Just so thankful to be able to say..CANCER FREE!!!!
First full night sleep in my own bed the other night…that was a treat…first time a full night’s sleep since last October!!! It’s kind of nice to hook up to the night bag, and don’t have to worry!!! Something pops up everyday..that I say..Oh ya..never thought of that..or oh I guess that might work…or oh shit can’t do that yet!!!! Blessed to be on the vertical side of life…learning and coping for the next little bit, and all honesty be told…it’s a bit challenging and sometimes a little bit of tears still sneak down my cheeks,,,but everyday is getting better ,,,and that’s okay!!!!!
ShellyIt never seems to be the surgery that catches up with us. It’s the follow-up punch during recovery. You’ve still got a ways to go before you feel anything close to fully recovered, but you’ll get there, regardless of the challenges that lurk around the next corner. Keep on keeping on!
Oh my Shelly! That is a very serious complication! So glad to hear you are doing better. I know exactly how you feel. Getting used to everything – the changes. I like the night drainage bag too. Actually, I love it! So nice not getting up 6 times in the middle of the night. I was teary when I got home from the hospital. It is just part of the healing process – physically and mentally. A little frustrating at times learning the new normal. It is an adjustment. I am old hat now at changing my pouch. Strange as it might sound, most of the time I don’t even notice it. Somehow it just becomes part of you. Take care girl!
well there was one really important piece of information that I forgot to include in my little piece…………….I was sent a beautiful quilt from a “secret angel”…and I am so thrilled to have this quilt as it has been my safe place to fall these days!!!!! What an amazing gesture to have thought and made this beautiful quilt…..to you and the bladder cancer supporters…thank you so very much….it’s things like this that remind you …today is a good day!!! A gift forever treasured !!!!!! Bless You!!!!
ShellyWow you have through so much Shelly, so glad you are now home and on your way to full recovery. I am sure it will take some time, but oh yeah CANCER FREE!!!!!!!.
Hugs,
JackSo glad to hear you are now recovering from what sounded like a terrible ordeal, Shelly.
For only 6 weeks after your RC, you sound like you are doing amazingly well, especially considering how sick you were from the clots in your lung. That was shocking to read that the RC was “nothing” compared to those clots. Very descriptive about how awfully sick you must have been.
And when you write about the daily ups and downs you are having now – how some issue pops up every day, and how sometimes you get teary and discouraged – you sure make me remember the first few months after my IC surgery. Everything about wearing and changing the pouch seemed so awkward and complicated for me at the beginning.
But then, several months after the surgery, I remember realizing that I was no longer constantly conscious of the pouch. It kind of disappeared and became part of me.
And the “cancer free” status is such a joy. I wish for you a continued steady recovery, and return to your new normal – cancer survivor and happy ostomate.Really happy you are cancer free but also really sorry about the blood clots. Need to have some good Texas tequila. But the quilt works better actually. I got one too and about 2 years ago and I have it EVERY NIGHT. Love the feeling of being covered with the angel’s work of art and prayer. Your humorous (and thus positive) attitude makes a big difference. I guess the nice thing about an RC is that you get to sleep through it. It’s what happens after that is such a pain in the but*, as Greg said. Good luck to you.
Kiowa
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