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I’ am From the Ottawa, Ont area. Last Jan 2013 I saw blood in my urine 1 time only no other Symptoms, Had a regular Doc appointment in 1 week so I mentioned it to my Doc, sent me to a urologist who sent me for CT scan, blood work and My first Cystoscopy (That was fun (not), lol) So Bladder cancer was found in my bladder, had a turbt set up for a couple weeks later, They were able to remove all of it and the results were favorable , Low Grade non-invasive CIS.(caught very early)
This site was very helpful with all the info I needed to understand my new life ” Living with Bladder Cancer” with out this site I would not have found some much needed Piece of mind for that first initial scare I had when They told me I had Cancer.
So Thanks to all for the posting’s, kept me informed and knowledgeable about my own crisis And at the time I was told I had BC it sent me into crisis mode.
So it’s a little over a year later , cysto’s every 3 months, last one was today All ClearThanks again everyone
Glad you’ve been with us and now have commented. Wonderful to hear good news and yours is good. Sounds like your doc was on top of his game and that is also excellent news for his patients, of whom you are one.
Your comments give hope to others. Thank you.Hi Greg50
Welcome to BCC
Sorry to hear you have the big C. That is what draws everyone to this site. Like you I was reluctant to sign up and become a member of this new and extended family because it confirms that my life will forever revolve around cancer treatment and cancer watch. Cystos are not a fun thing but everyone here has them on a regular basis.
Your news is the best we can hope for and it is great to hear a success story.
Please keep us up to date on your progress.Mike
Hello Greg50,
Welcome and GREAT to hear about the “all clears” since your first TURBT. Glad you found the site helpful and that you joined in. The more experience and sharing really helps.
I had BC too. I had not seen any blood (gross sighting) but during my annual physical June 2012 there was blood in my urine…a cytology indicated suspect BC somewhere in the uretheral track and so off to a urologist I went. 2 weeks later I was scheduled and had my first TURBT…a TA non-invasive tumor was found along with CIS. I was treated with BCG for the CIS and while it returned I have been all clear since Sept 2013…I feel very fortuntate. I asked for BCG maintenance of 2 treaments every 6 months because of the recurrence. I’ve been seeing my urologist for cysto’s every 3 months too.
We are very fortunate to have so many on this site who open up and share but also, who will go out of their way to offer assistance even when they themselves have some tough issues to deal with, either themselves, or their love one(s). We are a very informed group because of BCC
Stay connected, stay positive and keep up posting…:)
Rick
Greg50 I wanted to add my welcome also and so glad you decided to join us. All of us here have travelled the road you’re on and every person that adds their voice encourages us all. Happy to hear you’ve had an all clear as it’s really the best news and we hope it happens to everyone going for their cystoscopies and watching the tv monitor with dread. You’ll be a support to all those that come to the site looking for answers and/or encouragement when they need it the most.
FloWelcome to our site Greg50!! You will find many friends here. It takes one to know one when it comes to dealing with a particular disease, in our case BC. When one says how “fun” a cysto is we know all too well what that means. LOL!! Please visit often, bring your questions, concerns, laughs, jokes, tough stuff etc. etc. That’s what we are her for. ((((HUGS))))
Welcome and congrats on the “All Clear”!
I’m glad that our BCC website has been helpful! succes!!
IevaHey Greg50. Congrats on the all clear and way to go in finding this site and making yourself known. You will not regret the support and resource that everyone on this site is. It made and is still making a huge diff in my journey with BC, both during and post treatment.
Hi Greg50!
It’s never too late to introduce or to join this wonderful community and I’m glad you did! And what’s even better is that you did it with some awesome positive results to back up your intro! We’re all very happy for you as in this world a success of one is a success of all! Best wishes from Vancouver, BC!
AugsburgHi Greg50
Like you,I too have been monitoring the BCC website since my initial diagnosis of bladder cancer over 15 months ago. Initially, I had NMIBC, albeit very aggressive high grade tumors. I opted for the BCG treatment, and after the initial 6 week treatment, I was given the all clear from pathology. Two subsequent cystoscopy checks also resulted in clear results. However, on my most recent turbp, the pathology was not so great. The diagnosis is cancer in the bladder, bladder cancer in the prostate and urethra. I am scheduled for RC, prostate and urethral removal at the end of the month, and hopefully a successful Indiana Pouch procedure.
I have spoken to a regular BCC member who underwent the same procedure in 2011, with the same surgeon, and I am greatly reassured. As a matter of fact, it was this surgeon who suggested I contact this person.
I think my situation proves that we can never let our guard down when confronted with bladder cancer.DaveS
Dave Summerton
Hi Dave, welcome to the forum as a participant, rather than a lerker, (just kidding). I’m glad you joined as this is the place to learn all there is to know about bladder cancer. I just joined a few months ago and I’m so glad I did. I was such a green horn I didn’t even know enough about it to ask an intelligent question of my doctor and there really wasn’t a lot of info coming from him. I had never even heard about it, so I was in total shock when told I had it. This came on the heels of colon cancer and lung cancer previously diagnosed almost 5 years ago. I figured this bladder cancer was related to those two cancers, but later found out that wasn’t the case. I’ve been dealing with bladder cancer now for almost a year and a half and I’ve had so many surgeries, I’ve lost count. I had a tumor removed from the tube going from the bladder to the kidney, (along with a good chunk of that tube) and as far as I know at this point, there are no tumors visible from the last cystoscopy I had a few weeks ago. I will have another surgery later this year, or early in the New Year and of course, scans, etc. until then. I’m told this is a very aggressive form of bladder cancer, so I expect I have a long road ahead and likely bladder removal in the end.
I wish you well with your up-coming surgery, but keep us posted on how you get along with it. Again welcome to the forum where people on here are very helpful with providing info or giving directions on where to find answers.
Lorraine
Hi Dave, welcome to the forum as a participant, rather than a lerker, (just kidding). I’m glad you joined as this is the place to learn all there is to know about bladder cancer. I just joined a few months ago and I’m so glad I did. I was such a green horn I didn’t even know enough about it to ask an intelligent question of my doctor and there really wasn’t a lot of info coming from him. I had never even heard about it, so I was in total shock when told I had it. This came on the heels of colon cancer and lung cancer previously diagnosed almost 5 years ago. I figured this bladder cancer was related to those two cancers, but later found out that wasn’t the case. I’ve been dealing with bladder cancer now for almost a year and a half and I’ve had so many surgeries, I’ve lost count. I had a tumor removed from the tube going from the bladder to the kidney, (along with a good chunk of that tube) and as far as I know at this point, there are no tumors visible from the last cystoscopy I had a few weeks ago. I will have another surgery later this year, or early in the New Year and of course, scans, etc. until then. I’m told this is a very aggressive form of bladder cancer, so I expect I have a long road ahead and likely bladder removal in the end.
I wish you well with your up-coming surgery, but keep us posted on how you get along with it. Again welcome to the forum where people on here are very helpful with providing info or giving directions on where to find answers.
Lorraine
Thanks for your good wishes. I have had, and still do, a very positive attitude throughout this entire journey ,and feel that this is very important for those of us who are on the same journey. I will keep you posted on my results, and also wish you the very best in the coming months.
DaveDave Summerton
Dave
Hello and welcome to this forum. It is great that you have been using this site to get better informed. I also found it helpful as well as talking to others that are going through this battle with BC.
I wish you all the best with your upcoming surgery!
Glenn
Hiya Greg50,
Ah those lovely words “ALL CLEAR”. First time you hear those so much of the fear settles down.
I was diagnosed early 2008 Almost 7 years now. I will be going for my yearly test soon.
And I still want to hear those words.So glad you caught it early , stay well, and welcome , Jeanne
Hi Greg50
Welcome to the site! I had CIS as well. Apparently it isn’t as common as the other types of bladder cancer, so it is nice to have a brother on the site.
So glad you had “All Clear”. Those are the best words to hear. I’ve had the same news myself lately, so hang in there, take care of yourself!
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