skip to Main Content
BCC_Discussion-Forum-Page-Header-new

IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #7597

    Just came home from my overnight stay and this one was easier as no cathatar as tumor was small and felt fine after the bladder flush. Doc said there was two suspicious areas but took a biopsy but said could be scar tissue. If it is cancer cells then I start BCG. For 6 weeks once a week and then a break and start again. Is this type of BCG the norm? Told the effective ness was 50/80%. Go back in 4 weeks for the follow up and hoping for positive results.

    #14120
    Greg
    Participant

    It is common to have BCG once a week for six weeks after a TURBT depending on the stage and grade. Get a copy of the pathology report for your own records so you know exactly what they are saying.

    #14121
    Jack Moon
    Keymaster

    I agree with Greg, insure you get a copy of your pathology report so you know if it is bladder cancer the stage and grade. This information is what is used by the doctors to determine the treatments necessary.
    If you need assistance understanding the report, please contact me.
    All the best,
    Jack

    #14122
    KIOWA
    Participant

    As much as I hate to agree specifically and especially with Greg, I agree with Jack and Greg. You’ll be OK, positivve thinking works wonders. So does tequila and good Texas chili.

    Kiowa

    #14123
    marysue
    Participant

    I did 6 weeks of BCG after my first TURBT and again after my second and then the second time it was followed by 3 round of 3 weeks each ending this past January. I was TaG3 meaning noninvasive but high grade. If your cancer has been high grade most uros recommend BCG as a followup from a TURBT because it has a greater chance of going invasive on reoccurence than low grade. I have heard that 6 weeks of BCG is about 60% effective and if followed up with 1 year of maintenance (3 sets of 3 weeks at 3,6, 12 months after the original 6 weeks) it goes up to around 90%. Since I have done 2 sets of 6 and 3 rounds of 3 I am very confident of having kicked BC in the a**. There is still a lot of difference in opinion among uros about how much BCG and whether to even give it at all. Like the others have said make sure you get the results of yor pathology report so that you know exactly how serious your situation is. I have scar tissue on the surface of my bladder from the former tumour sites (6 in all). They now appear as little white star marks during my cysto exams. If you are having a followup cysto, I suggest that you see if you can watch the monitor during the exam because then you cam ask the uro what you are seeing. I’m lucky with my new uro. He explains everything during the exam. It makes you feel like you are watching something not actually getting an exam.

    #14124
    Jeanne
    Participant

    Sounds like the correct treatmen t. I had 6 weeks , then a 3 month wait,,then 6 more. Then a cystoscopy , removal of any recurring tumors and 6 more weeks. This was a pattern till no new tumors appeared.

    Been a couple of years now and no new tumors 🙂

    Good luck , hope all turns out well.

Viewing 6 posts - 1 through 6 (of 6 total)
  • You must be logged in to reply to this topic.
Back To Top