Ron M
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Viewing 6 posts - 1 through 6 (of 6 total)
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  • May 5, 2013 at 9:30 pm #7785
    rpmarleau@hotmail.com
    Participant

    I had a tumor removed which the biopsy said was non-invasive but high grade. I subsequently had six treatments of BCG, one each week. After a few weeks from finishing the treatments I had another cystoscopy and the biopsy indicated I had non-invasive and high grade without any impact on the cancer. I was suggested to have another six treatments of BCG. If the first was not effective, can the second be. Anyone have a similar experience? NOW WHAT!!!

    May 5, 2013 at 10:00 pm #15460
    Jack Moon
    Keymaster

    Hi RP

    I had a recurrence after the initial 6 BCG treatments. Then I had another 6 treatments and 1 more recurrence. Then we tried 1 instillation of mitomycin C after the 3rd turbt and another 6 BCG treatments. Then an All Clear. Then another 12 monthly BCG treatments. Been cancer free now over 5 years.
    I recommend since you have high grade noninvasive, you may seek a 2nd opinion. We can assist you in arranging.
    All the best,
    Jack

    May 6, 2013 at 12:55 pm #15461
    Greg
    Participant

    Hi RP:
    Not an unfamiliar story, but many who go this route have good success so stick with it.
    Jack’s offer of a second opinion at a major cancer centre is a great one. Take him up on the assistance.
    Be your own best advocate.
    Greg

    May 6, 2013 at 6:23 pm #15462
    rpmarleau@hotmail.com
    Participant

    Hi Greg!

    Thanks for your response. Much appreciated. I spoke to Jack and the Urologist I have is the one he would recommend.

    Peace!

    Ron

    May 7, 2013 at 4:58 am #15466
    Kari Rud
    Participant

    Hello RP:

    Please check out the web site for Johns Hopkins. My husband’s slides were sent there for 2nd opinion ($250) on pathology. The 2nd opinion confirmed the 1st opinion and added some detail.

    There is also a system for 2nd opinion on treatments, based on medical reports and files ($550 was quoted at one point, but you would have to check). The specialists in charge of urology and pathology (Dr. Schoenberg, and Dr. Epstein) are apparently extremely eminent.

    As a result of the 2nd opinion, RC and BCG were taken off the list for him and he was referred to a medical oncologist and is now on chemo. This is probably the right choice for him and may not be relevant for you.

    But I think more people should know it is relatively inexpensive, and very fast, to get a second opinion and there is no need to go in person to the USA.

    Wishing you all the best,
    Claire McMordie

    May 7, 2013 at 2:33 pm #15468
    rpmarleau@hotmail.com
    Participant

    Hi Claire!

    Thank you for the information regarding a second opinion.
    Appreciate your input.
    Thanks.

    Peace!

    Ron Marleau

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