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Homepage – Forum Forums Muscle Invasive Bladder Cancer Questions about bladder removal

Viewing 7 posts - 1 through 7 (of 7 total)
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  • #8342
    aussie489
    Participant

    I’m about to have my bladder removed tomorrow. Any suggestions for rehabilitation, please?

    #20244
    GerryW
    Keymaster

    Had mine removed January 12th with ileal conduit (stoma) option…. returning to work in two weeks.
    I got best advice from my surgeon as to suggested lifting limits and recovery times. Everyone is different. I’m 64, around only 160# and did a lot of manual work prior to surgery.
    I found that for the first three days my abdomen required me to *very gently* roll out of bed, but once out was able to walk longer distances outside my room each day (initially with assistance). Walking and sitting (rather than lying down) seemed to be the best therapy for me. I hear that lying down too much can cause lung congestion, and walking is good to get the bowels moving. It also helped that my wife and daughter treated me to some homemade stew and Chicken nuggets after a few days.
    Once home, I have been keeping mobile and doing some light chores around the house being careful to ‘listen’ to my body and avoid pulling and lifting more than 5 or so lbs in these first few weeks especially while the stitches dissolve and healing is only starting. Every day gets better. I found the most rapid improvement between day 3 and day 7.
    Key for me is to keep active both physically and mentally, thankful that I no longer need to be concerned about a problem bladder and focusing on the good that has come of this.
    Second day back to work on light duty to avoid heavy lifting for another month or so. …. all good. Did have slight constipation a week or so ago, but fixed by increasing fluid intake and eating more fiber..apples etc…

    Kingston and the 1000 Islands

    #20245
    Porterwj@rogers.com
    Participant

    I found constipation to be a major problem.
    Recommend senokot or whatever your doctor advises but take it early.
    You probably have better hospital rooms in the USA but ear plugs and eye shades are required up here to get any sleep in a hospital.
    Food is also terrible but you cannot eat for a couple of days anyway.
    Also bring your iPhone and head phones to pass the time.
    I had the ileal conduit and it works well.
    Good luck

    #20246
    GerryW
    Keymaster

    Agreed that the food could be better… I picked through the vegitables and mashed potatoes…. food too spicy except for some grilled Atlantic Salmon which I unfortunately had to cut short because of a neighbor who didn’t get along with fish!
    Constipation was only a minor problem after two weeks and then only for a day until I took 1 Senekot-s, a couple of bowls of chile and increased my water intake.

    Kingston and the 1000 Islands

    #20247
    rock2013
    Participant

    what did you choose? Illegal conduit or a neobladder? Neo is a 10 to 12 hours surgery and IC 5 to 7. Of course, recovery is longer for neo. Best of luck!.

    #20270
    aussie489
    Participant

    Thank you to all the posts. I was operated on 10th Feb and was told to get out of bed and walk the next day. By day 3 I was walking a mile a day, even receiving a certificate of proof.
    All that sounds good but I was discharged on day 4 and was driven home 4 hours away and I have found that the drainage spot I had to drain the abbess that was next to my bladder is giving me more pain than the stoma area.
    My bladder was the size of a thimble and my prostate was like cement the Dr. said, thanks to radiation.
    Thank goodness that’s all over.
    I want to thank you all for your comments and know I really appreciate every one of them

    #20292
    stumblegirl14
    Participant

    I am not any where near you aussie but wish you the best of luck as you go forward. Lots of folks on this site to help you as you travel this most difficult journey. Good wishes sent your way.

    Flo

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