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- This topic has 4 replies, 3 voices, and was last updated 10 years, 4 months ago by vals.
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August 15, 2014 at 4:00 pm #8103valsParticipant
Problems. Since I’ve been home, many problems with leakage almost every day. I can’t go on like this. Hopefully the stoma nurse can help with a better fit produce. I am using Hollister. I do not have a stoma, I just have two little stents sticking out.
My only problem: leakage. Then I have to do a lot of washing,August 15, 2014 at 9:05 pm #17858GregParticipantHi Val. Not sure I understand when you say you do not have a stoma. Perhaps you could describe your diversion a little more for us so that we might offer some help. For example, my stoma is a red, raspberry-like protrusion of intestine from the right side of my abdomen slightly to the right and slightly lower than my umbilicus (navel). It protrudes out about a half inch or so and is just less than an inch in diameter. I am not a robust individual so I do not have creases and rolls around which to fit my wafer. It sticks pretty solidly for about three or four days and even then I have to peel it off with some effort. I do not need a convex appliance due to my anatomy and the construction of the diversion and I find I rarely leak (though it has happened once on a catastrophic basis while I was at a wedding requiring me to leave and change). I do use skin prep prior to sticking the wafer on, though even when I forget, it sticks really well as long as my skin is dry at the time. I shower daily with it on with no problems. I never did have stents exiting it; I did have a catheter in it for a while until it fell out of its own accord! I empty the bag when it is about a third full. It gets heavy after that, but even when it is nearly full it has not leaked.
Ensure you see an enterostomal nurse asap to get help with this. Call the doc and get an appointment because so many leaks would seem to indicate the need for a professional to give advice, in my opinion. Perhaps your local CCAC office could help if you call them. That’s why they exist.
Looking forward to better days for you.
GregAugust 16, 2014 at 12:19 am #17859valsParticipantHi Greg. My stoma is just two little strings sticking out. Mine his hidden. I don’t know why. But that could be my problem. A stoma nurse from Revere hopefullly will visit on Monday to see what can be done. It’s awful, The nurses are here almost every day. Of course, I would be the lucky one without astoma/ Wish me luck
August 20, 2014 at 11:41 pm #17878KIOWAParticipantHi val, I’m sure this will get worked out so hang in there. Perhaps you could question the nurse about it, or better yet, your urologist or surgeon. I’ve not heard of this kind of diversion before, I am familiar (even though I do not have one) with what Greg very nicely described. I have an idea there is an easy fix to this but not knowing how that diversion was done makes it difficult to give any specific advice, except to suggest you get information from the medical staff on this. I wish you well.
Kiowa
September 14, 2014 at 4:41 pm #18107valsParticipantFound out that the stents tgey put in were in too long and that’s what caused the fungal infection.
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