Parastomal skin problems, following radical cystectomy

[Jim-SW-USA]

I am having a flare-up of thrush under my urostomy flange, and I know how to treat that, but having this issue reminds me that I have been meaning to ask about a more day-to-day problem I have when a worse problem, like my current one, isn’t plaguing me.  That is that even when my skin is at its best, there still is a sort of impression of the flange that is impressed into the skin.  I guess that must be normal, because I can’t think of any way to make that go away.  Is there anything that could or should be done about that kind of thing?

 

Jim

[Nightingale]

Hello Jim,

Thank you for posting your question in the Forum.  I will try to get answers for you from other patients who may be experiencing the same as you and post their response.  In the meanwhile, I hope somebody reads your questions and replies directly.

My best,

[Nightingale]

Hello Jim,

Here is a reply I received from a another patient after he read your post.

”I’m a relatively new user of urostomy products.  It has been 12 weeks now and its been a trial and error situation for me.  I have been having issues with my flanges for some time where I would leak after only a day after installation.  I was getting blisters and painful rashes that we’re now getting control of.  It appears I’m sensitive to Elastoplast or similar items.  My Urostomy nurse has put me on a steroid inhaler ( not to breath in but to spray over the flange area )  I’m getting good results using that so maybe that can help with the thrush situation.   I have indentations where the flange is applied constantly.  I’m now giving the area a 20 -30 minute airing once a week where I use a larger syringe turning it around where the plunger side is applied over the stoma  with a tube on the other side directing urine to a container.  This seems to help a lot.  Sure hope these ideas are helpful.“

I hope this helps you.

 

[Nightingale]

Hello Jim,

Here is another reply I received from another patient.

“For me even though my skin is in good condition I still get that “impression” and it looks redish to some degree. I now consider that “normal” for me and I do not get any itching or other side effects from this “impression” area.”

I hope this helps…

 

[Nightingale]

Hello again Jim,

Here is one more reply I received from another patient.

“There will be a slight imprint. To minimize it I rotate the flange since I use a 2-piece Hollister. It’s been over 2.5 years and no problem. Also I use a skin barrier spray (Coloplast).”

 

My best,

[Author]

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