Operation Bookshelf Campaign

[Joe]

We, Greater Vancouver region support group has started a new awareness campaign.  It does not cost much, in most cases no cost.  It will require individuals to spend some time, but it will be minimum.  We have decided to call the awareness campaign – “Operation Bookshelf”.  Operation Bookshelf campaign it to have bladder cancer related books on a shelf in public libraries.   The idea came when one of our support group members went to a local library to look for bladder cancer related books, he could not find any though he found several shelves were occupied with books on breast cancer and prostate cancer.   We did online search of the public library of municipalities and districts which have its own public library system.  Then,  we checked their online catalog on  bladder cancer, prostate cancer and bladder cancer.   Greater Vancouver and Fraser River region have 13 different public system for population of about 2.5 million people.   In total of 13 different public library system, the number of  cataloged books, including e-books and audio books on Breast Cancer are 1,210, Prostate Cancer are 287 and Bladder Cancer are only 8.    According to the data from Canadian Cancer Society, in 2017,  26,300 breast cancers, 21,300 prostate cancers and 8,900 bladder cancers were diagnosed.   Bladder cancers are 34% of breast cancers and 42% of prostate cancers.   For reasons I do not know, bladder cancer is under represented even in our public library system.  So, we are hoping that at least one bladder cancer book is on a bookshelf of each public library system.  That is why we have started “Operation Bookshelf”.    We believe it may apply to other cities in Canada. For example, in Toronto Public Library System, 561 are found for breast cancer, 124 are found are for prostate cancer and 19 are found for bladder cancer.  So, this issue looks like systemic through out Canada.

Just to be sure that we are only raising awareness of this seems to be an issue by providing the relevant data, but  leave it to individuals if they want to request a requisition to the public library of their municipalities and  decide which bladder cancer book they like to order.

In Greater Vancouver Support Group, we have provided those data along with a sample of books on bladder cancer available on Amazon.CA to members of our support group.   See below for our researched data.    If you want the sample of books available on Amazon.Ca, please send me a request and I will send it to you.  You can also  just do search on Bladder Cancer on Amazon Book.

Unfortunately, we could not find any book with Canadian perspective.  We would like to see books written by Canadian doctors and patients in future, so we can request those books also to libraries across Canada.

Joe

 

• This topic was modified 6 years, 2 months ago by Jack Moon.

[GerryW]

Hi, Joe

Great initiative! I help stock the reference library at KGH hospital with our BCC print material. I will now check the university med library and a couple of public libraries here in Kingston.

Would be interested in your book selections.

Kingston and the 1000 Islands

[Joe]

Hi Gerry,

There are not many books on bladder cancer available with Amazon to start with but below are a few books we have found.   Please note that it will help the library requisition department to order a book if  the title, author, publisher and ISBN (International Standard Book Number) are provided.     Joe

Bladder Cancer: A Patient-Friendly Guide to Understanding Your Diagnosis and Treatment

Author  David Pulver, Mark Schoenberg, MD and Fran Pulver  **David is 10 year survivor and a board member of BCAN and  Dr. Schoenberg has been his doctor

Paperback  198 pages

Publisher Patient-Friendly Publishing

ISBN  978-1-946364-00-5

Endorsed by BCAN (Bladder Cancer America Network)

Amazon Price : $CDN 32.34

* This book is the first book which has been acquired by a library as a part of the intiative.

The Cleveland Clinic Guide to Bladder Cancer
Author   Derek Raghavan
Publisher  Cleveland Clinic    March  2010
·         Paperback : 224 pasges

·         ASIN: B01B990P46

Amazon Price : $CDN 221.85

** It seems the price is too high.

 

Johns Hopkins Patients’ Guide to Bladder Cancer
·         Author    Mark L Gonzalgo, MD, PhD (Editor)

·         Paperback :  132 pages

·         Jones & Bartlett Learning  Feb 9, 2010

·          ISBN 978-0-763-77424-0

·         ASIN: B01MY3UMI9

·         Amazon Price  $43.95

100 Questions & Answers About Bladder Cancer 2nd Edition
Paperback 154 pages
Authors Pamepa Ellsworth MD, Brett Carswell, MD
·         ISBN10 0763795879

·         ISBN13 9780763795870

·         Publisher Jones and Bartlett Publishers, Inc, Aug 19,2010

·

Back To Life: A Bladder Cancer Journey
Author  Frank Sadowski
Publisher Cardboard Box Books
ISBN-13 978-0692401217
“Back To Life: A Bladder Cancer Journey by Frank Sadowski is a first-person narrative covering the symptoms, diagnosis, treatment decisions, surgery and recovery of one man diagnosed with advanced bladder cancer in 2007”
Amazon Price  Paperback  $CDN 13.99

Traveling a Rocky Road with Love, Faith, and Guts: Bladder Cancer, COPD, Caregiving, Polio and More
Author  Sylvia L Ramsey
·         Paperback: 136 pages

·         Publisher: CreateSpace Independent Publishing Platform (Feb. 21 2012)

·         Language: English

·         ISBN-10: 1463554672

·         ISBN-13: 978-1463554675

·         Amzon Price $17.27

https://www.healthywomen.org/content/blog-entry/bladder-cancer-survivor-publishes-book

The Funny Thing About Bladder Cancer Paperback
·         Paperback: 100 pages

·         Publisher: CreateSpace Independent Publishing Platform (May 18 2017)

·         Language: English

·         ISBN-10: 9781546764557

·         ISBN-13: 978-1546764557

·         ASIN: 1546764550

Bladder Cancer: Diagnosis and Clinical Management Hardbook

Author  Seth P. Lerner (Editor), ardcover Mark P. Schoenberg (Editor), Cora N. Sternberg (Editor)

·         Hardcover: 448 pages

·         Publisher: Wiley-Blackwell; 1 edition (Oct. 12 2015)

·         Language: English

·         ISBN-10: 9781118674840

·         ISBN-13: 978-1118674840

·         Amazon price  $CDN 168

[marysue]

Hi Joe:

I found some BC book online through the Indigo books website.  I think you have a couple of the titles listed above.  This is a great idea.  That is one of the main things that I hear from people when dealing with patient support group calls.  Everyone wants information.  Patient written books are valuable because that is what people want.  Newbies want to hear from the more experienced about what to expect and how to get through it.  Thanks for starting this.  ((((HUGS))))

[GerryW]

Last year, one of our forum contributors was starting to compile a book of patient stories.

Kingston and the 1000 Islands

[GerryW]

GerryW wrote:

Last year, MarySue was starting to compile a book of patient stories. Maybe it could be part of the collection.

https://forums.bladdercancercanada.org/forums/topic/a-book-of-patient-stories-2/#post-22468

• This reply was modified 6 years, 2 months ago by GerryW.

Kingston and the 1000 Islands

[Joe]

Yes I am aware of her work in progress.  When her book is finished and published, There should not be any problem of libraries adding her book to it the collection of a library even if there are a few bladder cancer books.  The trick is to add “Canada” in the title of the book, i.e. ” Bladder Cancer Patients Stories – Canadian Perspectives”.   The reasons are as follows.   There are only a handful of bladder cancer books aimed at general public anyway and they are mostly American.  Secondly, there are so many breast cancer books and prostate cancer books on shelves of public libraries.  The third reason is that when I checked prostate cancer books, the book which always showed up in every library is “The Canadian Guide to Prostate Cancer”.   I am guessing that is how the book selection department checks if a new requested book is redundant or not.  It’s all marketing though I have no idea how to market books.    Anyway the goal of Operation Bookshelf” is increase awareness of bladder cancer among general public and the strategy is  to put as many books in public libraries, which has ” bladder cancer”  in the title .

Finally, we got the first book was ordered and now sits on a shelf which has cancer books.  Below is the picture before and after the bladder cancer book was ordered.    Also see there are many breast cancer books and prostate cancer books.   I wonder if they had a similar campaign.

Anyway,  the Vancouver region support group wants to challenge all other support groups in Canada in Operation Bookshelf Campaign to decide which city gets the most bladder cancer related books “newly ordered” and put on a shelf  in public libraries.

Do you know how I can access to email address of all in person support groups in Canada?

Joe

 

 

 

 

 

[Nightingale]

Great work Joe!  I run the in-person support group in Hamilton.  On the main BCC site you can access each of the cities offering in-person support groups.  You can also access via the Forum by clicking on the link I pasted in the category for in-person support groups.

Good luck with that.

[Author]

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