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While I haven’t had my pathology come back yet I am preparing myself through research of worse case scenarios. My tumour was very large. It is papillary. I’m expecting minimum stage 3 high grade. Anyway, I am wondering if anyone has experience with an urostomy bag being morbidly obese. (330lbs and 5’8”) location, issues, complications? Would a neobladder be better in my case?
Hello DV2061,
In my last Support Group meeting, we had a NSWOC who is very knowledgeable about Urostomy and the external bag. We also had several patients both in-person as well as via Zoom. The person who was having the most difficulty with leakage had a relatively large belly. The nurse observed that this person’s urostomy was protruding quite a bit even though the stoma was an ‘innie’ as opposed to protruding outward. She provided several options to this person to try.
May I ask if you’re interested in talking with a peer support volunteer on a 1:1 basis or even this nurse who might be willing to talk with you. I’ll have to check. BTW, she is very knowledgeable on all things related to ostomy/urostomy. Let me know please.
My Best,
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