- This topic has 12 replies, 9 voices, and was last updated 9 years, 8 months ago by
.
-
Posts
-
Greetings from Kitchener, ON! I just received confirmation, las week, of the pathology indicating invasive bladder cancer. My Urologist gave one option and that is radical cystectomy and neo bladder reconstruction which will happen on March 31st. I only have my right kidney, so I had to have a nephrostomy tube put in to keep my kidney in good health.
I have some questions regarding Tumor pain which seems to have gotten worse, so much so that I am taking 2 Percocet every 4 hours, which I don’t like to do. I had been managing with extra strength Tylenol with codeine and Advil for break through pain. This morning I woke to a fever of 39.95 C (102.5 F). Should I be concerned?Hi Rhonda Lee!
Sorry to learn of your diagnosis but welcome to our site! I’m a bladder cancer survivior but didn’t have to have my bladder removed. As to answer your question – I would be a bit concerned of the fever because it generally means that your body is fighting something, often an infection. Or it could be the onset of something viral like the flu. If the fever continues I would contact your health care provider and check it out because it may or may not require treatment and that could impact your impending cystectomy being performed. Keep in touch and let us know how it goes.
Sitting in the ER hooked up to IV antibiotics, glad I took your advice Mary Sue. It turns out that I do have a kidney infection. I’m so angry that my body couldn’t wait 12 days for my surgery. So not fair!
I broke down for the first time since this all began, I’m actually scared for the first time too.
I don’t know yet if I’ll be admitted, I guess they can send you home with an IV line then a nurse from CCAC will come to my house every day to give antibiotics.
The good news out of all of this is I know my body well enough to know when something is really wrong.Hi Rhonda-Lee
So happy that Marysue was able to assist you and you are getting the infection looked after. Just wanted to offer you my best wishes with your upcoming surgery. Many member have gone through what you are about to and hopefully they can assist you with any questions.
All the best,
JackWelcome. Although I am unable to respond to your questions I did want to say hi. I have found the members are warm, supportive and informative so I am trusting you will find help here. Big hugs to you!!!
Melinda
I have no experience with high grade. I read on other sites about a couple of cases when after RC the cancer still escaped. Also I read that in some cases when they want to preserve the bladder they use BCG+interferon after BCG alone failed. And that was successful for some people. You can try some more treatments, but there is a risk. What does your first uro thinks now after the second opinion?
Hi Jantomasz
If you have had recurring T1 High Grade Non-Muscle Bladder Cancer with BCG failure, yes in my opinion you should be entitled to have your bladder removed.
Which Uro did you see in London, call his office and ask for a copy of his findings and recommendations.
All the best,
JackJonathan Izawa is a top bladder cancer specialist. I have met him several times, he is on the BCC medical advisory board. I personally would trust his opinion regarding his findings jantomasz. But it is your diagnosis not mine.
I would still recommend you call his office and see if you can get a copy of his report, just tell his assistant that your local Uro can not meet with you for a while.
All the best,
JackI just gave a link to the guide that stresses importance of BCG maintenance http://www.medscape.com/viewarticle/841617?src=confwrap&uac=227346EG.
I agree with 1/3 dose of BCG because it’s still very effective almost as much and lesser side effects. Fortunately, I don’t need it.Jantomasz, if that dr. Ozawa told you that he can treat you he most probably has BCG. And by the end of the year the BCG shortage might disappear. Or he just gave his opinion, but he is not going to do that, is he?
Dear Rhonda-Lee
Sorry to hear about you RC.You are in a safe place hear. It is normal tobe scared, and it’s ok to cry, be angry, feel all alone. This family understands.There is also a newbe to this site a female named PARISOTTO who has just posted and has a neo bladder . REACH FOR FAITH, BELIEVE IN HOPE, AND KNOW YOU ARE LOVED. I will say a prayer for your successful surgery and full recovery.(((((((((hugs))))))))))Rhonda Lee I am a 52 year old female who has never had a surgery hospitalization ct scan and the like in my life ! I was told I go big or stay home . I had radical c in September and am feeling fantastic at this time . The surgery is a bit of a miracle in a sense just incredible what they can do . The recovery can be brutal but you do get through it !!!!! I did !!!
If you want to have a personal conversation please advise and I can coordinate a time. The key is to be comfortable with the process of recovery and the outcome will be worth it 🙂 it is a wonderful option .
Parisotto
In our case, our friend JACK suggested getting transferred over to a major cancer medical facility-which was for us Jurvinski in Hamilton. It was 100% the best advice we could have been given. Our urologist in another small town center was just not capable to handle the approach my father needed. Had we stayed the delay in service could have cost him is life. Thank God we took his advice and put our foot down to transfer. The process of diagnosis and scoping and continuous biopsies as well as follow up appointments seem to take so long in these smaller cities. Once we got to a major Cancer Centre the process was much much faster! PS Thanks Mr. Jack Moon. 😉
- You must be logged in to reply to this topic.
