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Hello all,
Not sure if this has been posted before. But, 2 months ago when I was initially diagnosed I did the “internet information search”
On this site:
http://blcwebcafe.org/content/view/103/113/lang,english/
I found a very good recommendation (See – “Guidelines on diagnosis and treatment of superficial bladder cancer” at the end of the article):
” * Vitamin E, A, and Lactobacillus Casei are probably effective in the prevention of the disease. ”
At my local Loblaws, I bought “Jameson” Vitamin E and A pills. The Lactobacillus Casei is available in “Danone DanActive” OR in “exact compete probiotic multi strain” capsules.
I have started to take the pills. However, before my TURBTs I was told not to take the Vitamin E and A.
I do not know how effective it will be now that I have the disease … but it can’t hurt and it may help with recurrence. At least it comes from a reputable source
FWIW and
HTH
DDep
Hi DDEP
Thanks for posting the above good information.
I know you are about to begin BCG treatments. I have posted this link below on some research done in 2012 regarding Vit. D and interaction with BCG.
I personally started taking Vit D supplements in 2007 during my 2nd round of 6 weekly BCG treatments and still take the supplements each day. As my Uro said back then, “well they certainly will not hurt you, just do not take too much per day. My family doc recommended I take 1,000 units in the summer months and 2,000 units in the other months.
https://www.urmc.rochester.edu/news/story/3513/vitamin-d–tb-vaccine-allies-in-fight-against-bladder-cancer.aspxJack
I take Women’s Jamieson multivitamins because it has those vitamins plus extra for the urinary tract.
There has been suggestion but not conclusive proof that consumption of cruciferous veggies like broccoli, cauliflower and cabbage help in prevention as well. Since they are healthy and low cal I make them a regular part of my diet.
I also heard but again don’t have conclusive proof that Vitamin D helps with the effectiveness of BCG treatments. I take 2000 IU of Vitamin D in the winter and 1000 IU in the summer. There has been study into the link between low Vitamin D levels and cancer. Since I’m going on 6 years cancer free I figure this may have helped with prevention.
As for the probiotics there has also been research into having a healthy gut as a way of preventing disease. I used to be plagued with yeast infections and was in the middle of treating a real doozy when I experienced my first bout of blood in my urine. I also had a version of bowel inflammation while doing BCG. Strong probiotics and a herbal formula recommended to me by a knowledgeable natural product salesperson helped straighten out my gut after I finished the BCG. I still do a lot of this stuff to maintain my health. The cost of these products takes a bit of a bite out of my budget but is worth it to keep me healthy.
Hi
I have always been a big fan of eating right and heavy emphasis on vegetables and fruits. In my research, getting the essentials from food is the best way. There are so many things in food that is not in a pill. If you just can’t get the balanced food, then do a vitamin. In one article I read several years ago, the author went to a major conference of medical people that was to do with health and then observed what those medical people did and ate. Broccoli was a big one. So was blueberries. The author’s theory: the people who are researching what makes us healthier are going to be doing those things in their own life. When the author spoke to a number of the medical people, they all said they took a multi-vitamin.
Can’t stand broccoli, cauliflower, cabbage? Try them in a cream soup. This way the water soluble vitamins still get consumed. Radishes are also part of the same family.
I have been taking 2000 IU Vitamin D daily for the past upteen years.
Jack, thank-you for the article linking BCG and Vitamin D. Hoping it will help my response to the treatment.
I think what is interesting in this Bladder Cancer WebCafe article is that it summarizes EORTC policy. The recurrence/progression tables widely used by Urologists are based on that EORTC work (Babiuk et al.).
I wonder if there is more data available outside of the European Association of Urology (EAU) to support the Vitamin E, A and Lactobacillus Casei recommendation.
BTW, and FWIW the other EAU “Guidelines” are also very interesting.
DDep
Interesting discussion. I know that my Vit D levels were very low when bladder cancer struck me in 2008. My doc put me on supplements to get my levels to a healthy level. She told me that low Vit D levels are tied to cancer occurrences.
I have been taking Vit D, not daily but more in “fits & spurts”. My levels are much more in the normal range than back in 2008.
Eating correctly is the best thing we can do for ourselves – before, during & after bladder cancer. Each of us needs to figure out exactly what works for us. I went on an elimination diet, supervised by a nutritionist. Found out that I react to dairy & nightshade vegetables (peppers, tomatoes, potatoes). I have been off gluten for over 20 years. My inflammation throughout my body has gone down considerably because I’m off dairy & nightshades (still off gluten). I think staying healthy is the best thing I can do for myself!
Hello val
Have you tried going organic? This may give you an extra edge especially if you experience inflammation from foods.
FYI: before canola is harvested it is sprayed with chemicals to kill the plant and dry it out so it is easier to harvest. Then we consume the product….
Holy moly I had no idea that canola was sprayed for that purpose…Good grief, the things that we do to ourselves. Thanks for this bit of knowledge!!!
Hello Marysue
Yes, it is shocking the amount of chemicals used on the stuff we eat. Peas are also sprayed to kill them before harvesting.
I no longer use canola oil.
Take care
Why does a veggie need to be killed before harvesting? This makes no sense. How did you learn about this stuff?
Hello Marysue
It is called “dessicating”. Better production and to get a crop off before it freezes. Crop ripens faster, so to speak. Easier to harvest. Beyond that, Monsanto gets to sell more chemicals this way.
Growing up on the prairies, have been around farming all my life. Also had a lot of farm clients during my working years.
If the general public knew about all the stuff done to our food, it wouldn’t surprise me if there were riots. Part of the reason I made the choice to go organic.
Take care
Cheryl
Thanks for the info. I eat some things organic, some not. I try to follow the Environmental Working Group’s “Dirty Dozen” & “Clean 15” lists: http://www.ewg.org/foodnews/guide.php
Their entire site is very interesting – lots of news about products, not just food. I found out the information about shampoos & make-up fascinating!
Hello Val
I eat organic, period. Expensive through most of the year but thank goodness I have a garden and that sure helps with the cost.
I first read about the dirty dozen in Prevention magazine. What I liked about it was a simplified guideline for dirty dozen: the closer it is grown to the ground the more chemicals are used on it. If grown in the ground, safe to assume it is one of the dirty dozen. Of course there are exceptions: e.g. cherries.
Does organic taste better? Generally, yes. We have lots and lots and lots of company and quite often they are amazed by how good the food tastes. I don’t think it is my cooking abilities so I give credit to the organic food. People rave about my salads and that is a good case in point for it being the taste of fresh organic food. Now friends/family are starting to buy some food organic simply because it tastes better. #1 for taste better is organic bananas.Take care
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