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Homepage – Forum Forums Newly Diagnosed With Bladder Cancer My urologist tells me I have possible tumor over the phone

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  • #37434
    Charliecharger
    Participant

    Yesterday, December 19th, 2019. I got a call from the urologist I was referred to after visiting the ER 3 weeks prior for a concerning amount of blood in the urine. They did not give me any results at the hospital and told me it looked as if I had a possible polyp in my bladder and sent me off with antibiotics, when I got the call from the urologist this week I was at work, so he left me a message and told me that my urine test showed blood but didn’t give me full details and told me my ultrasound showed a “possible” tumor and that I need to go in for a procedure to see as soon as possible. He said at the end “ I can’t stress enough once again how important this exam is and said I “could” have bladder cancer. I’m not sure what a “possible” tumor means or if he just can’t tell me over the phone, but I am very concerned as a 19 year old university student.

    #37435
    Jack Moon
    Keymaster

    Hi Charlie

    Not a great voicemail to be left, but it is what it is can’t change it now. The doctor is using words like “possible” and “could have” because he really does not know yet. The next step for you will be what is called a cystocopy. The urologist will take a look inside your bladder with a light. The procedure lasts about 5 minutes and is not painful. Until this procedure is done the doctor can not determine if there in fact is a tumor in your bladder.  Not all growths or tumors in the bladder are cancerous. This can not be determined until the growth is removed and sent to the lab, which would be the next step.

    I would recommend you follow-up with the Urologist and get an appointment for a cystocopy.

    Keep us posted, as we have all experienced these procedure and are happy to answer any questions you may have.

    All the best,

    Jack

     

     

    #37436
    Nightingale
    Keymaster

    Hi Charliecharger,

    I would need Jack’s advice and make arrangements for the Cystoscopy.  I am a 10 year survivor because I caught mine very early and had it taken care of.  That is the one constant about Bladder Cancer.  Catch it early and the odds of survival are good.

    My Best.

     

    #37443
    Joe
    Participant

    Hi Charlie,

    I understand what you are going through.   I have been there.  We have been there.

    The difference is that we are much older and you are young.   90% of people who are diagnosed with bladder cancer is age 55+ and older so chances are in your favor that it may not be bladder cancer.

    You said that you are 19.   Statistically it is extremely low that the polyp the ultrasound found is a cancer.

    I live in BC.  I  follow statistics of bladder cancer in my province.   We had 1,535 people newly diagnosed as bladder cancer in 2016.  The population of BC is about 5 million. If you do the math, that is like only 30 people in 100,000 people got bladder cancer in 2016.  Out of that no one who was 19 or younger had bladder cancer.  There were 5 men and 5 women who were diagnosed with the bladder cancer in the age between 20-39.   Still that is like 0.2 people in 100,000.    So, there is higher probability that the polyp they found can be benign or something else than cancer.

    But, like others said, please make sure to see urologist as soon as anyway.

    Like Jack said, post any question you have.  We should be able to answer pretty much every question you come up with.

    We will be always here for you whenever you need.

    Cheers

    Joe

     

     

    #37512
    Donald123
    Participant

    Hi Charlie,

    Please do follow the advice of the posted above.  Timing is critical, as cancerous bladder tumours can grow quickly.  I had follow up CT scans every six months after my colon cancer colostomy, and everything was clear for 2.5 years.  Then blood appeared in my urine and a CT scan showed muscle invasive cancer three months after the previous scan.

    Chemo didn’t work for me and due to type of cancer radiation wouldn’t either.  I had the RC with neo-bladder construction nine weeks ago.  At 66 I am feeling well, getting my strength back, and making slow but steady progress controling my new bladder.

    Best wishes that all goes well with you.  Keep us posted and feel free to ask questions or seek support.

     

    Don

     

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