Homepage – Forum › Forums › Muscle Invasive Bladder Cancer › My New Normal
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November 30, 2016 at 12:21 pm #8734R WayneParticipant
Well now, if someone came to me prior to 2016 and said my day to day existence was about to get yet another fork in my road of life, I would have laughed it off.
Yet, here I am.
Short version, I am a 52 year old male, relatively healthy.
May 2nd, morning bladder relief, and kaboom, blood, lots of it.
Appointment with GP that day, ultrasound by weeks end.
3 shadows in the bladder got me an appointment May 30th with Dr Kamal of the relatively new Woodstock Hospital.
Originally diagnosed with non invasive bladder cancer involving 70% of my bladder.
Two Turbt surgeries June 13th and August 12th.
2nd surgery stopped for fear of perforation.
That got me an appointment with Dr Power of the London Health Sciences Centre-Victoria Hospital September 30th.
Radical Cystectomy November 1st with neobladder creation. Biopsy showed it was contained in my OE bladder, and they also found a Gleason 7 tumor had invaded 10% of my prostate. So I got a 2 for one deal.
4 weeks post op with 90% continence during the day.
Now working on night time continence with minimal success so far.
Lost a total of 32 lbs. I haven’t seen this number on the scale since my 20’s.
Gradually putting it back on. 4 lbs to date.On a personal note. I enjoy life. This was a cure to this invasion.
I want to continue to mentor my 3 daughters. I want to watch my grandchildren grow into productive adults, and a wife of 34 yrs I wish to continue to tease, taunt, comically irritate ( she openly states I am the son she never had, and my mother informed her a long time ago, that my wife has had me longer that she did, so there is a no return policy in effect ) that and enjoy life with.Ready, willing, and able to share my story, compare notes, and look forward to reading others.
On to the New Normal!November 30, 2016 at 3:32 pm #21191GerryWKeymasterGreat to that you are on the mend! We both have an RC and ‘2 for 1’s’ in common. My op was back in January and now I’m enjoying some of its benefts… long distance drives, good night’s sleep and more time to make memories with the family. It’s a great time of the year to be thankful!
Kingston and the 1000 Islands
November 30, 2016 at 7:13 pm #21194ValParticipantSo sorry to hear your life was turned around at such a young age. Bladder cancer can do that to us. Mine was caught early enough that I didn’t need an RC, but I have made lots of changes in my life and I am more grateful for everyday than ever before.
Keep sharing, asking questions and becoming a vital part of this community. Love your family and cherish everyday you are on this planet!
Good luck with the “new normal!”November 30, 2016 at 8:52 pm #21196GordParticipantGo Waypat Go!! Sorry to hear you need our community but so glad you connected! Sounds like you are making lemonade out of lemons. I was diagnosed in 2013 with Stage 2 BC, at age 52. Now 3.5 years cancer free, and pretty happy with my neo bladder. A positive attitude like yours will take you a long way, even when you hit the occasional bump in the road. You have any questions along the way don’t hesitate to ask here or PM me.
GordDecember 1, 2016 at 12:37 am #21197RCSParticipantWelcome to BCC WayPat. Mine was also caught early and I am three years cancer free after 18 BGC treatments. Quite a ride for you over a short period of time. Glad to see that they got everything and you are coping well with your new normal….a great attitude which goes a long way in fighting and beating this disease.
December 1, 2016 at 12:58 am #21198Jack MoonKeymasterWelcome WayPat. Keep that positive attitude you have and you are going to be just fine. Myself been cancer free since 2007. Life is good!
Jack -
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