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Homepage – Forum Forums Muscle Invasive Bladder Cancer More disturbing news!

Viewing 15 posts - 1 through 15 (of 20 total)
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  • #7686
    vancouverite
    Participant

    As I posted earlier, I have been scheduled for a cystectomy on January 30. My concern in the last post was what type of diversion to choose and get info from all on what to expect post surgery.
    Have been going through all the tests required prior to the surgery including a CT scan on Thursday of last week. Received a call from my àr. on Friday to advise that the scan has found a very large (7cm.) abdominal aortic aneurism. I have an appointment with a Vascular surgeon tomorrow morning to determine what the next step is.
    Not really sure why I am posting here this morning, just needing to hear from my BC friends, perhaps some of your levity–wisdom Greg! I am seriously considering Tequilla Chey.
    ào you think 8:30 in the morning is too early for that.
    Thanks for listening,
    Bonnie

    #14791
    Greg
    Participant

    Bonnie:
    What a relief that they found this now and not elbow deep into your pelvis. There’s nothing worse than a surgeon saying “oops” part way through the operation. Having dispensed with the levity, it IS good they found this at all, never mind found it now. As odd as it sounds, bladder cancer may have saved you a really awful experience with the “unknown” aneurism surprising you one day. “God works in a mysterious way His wonders to perform” says the poet. So sorry you’re going through this. But thank you for sharing your burden with us. We can pray, encourage – and even laugh with you, but never at you.
    Oh, and 8:30 is always too early for Chey – or tequila for that matter!
    Greg

    #14792
    marysue
    Participant

    All I can say Bonnie is Wow! HOLY ****! Excuse my French!!But as Greg said at least it was found now and not during surgery. I am really sorry to learn that this will undoubtably add to or change the journey you must take. YOu’re in my thoughts and prayers. Seriously, you deserve tequila now and when you see the surgeon! ((((BIIIGGGG HUUUUGGGGSSS))))

    #14793
    Joanne
    Participant

    Bonnie,
    Have faith. We all know this is a terribly difficult time that you and your loved ones are going through. I can certainly empathize having gone thru
    Unexpected surprises with my brother .

    The important thing is for you to know that you WILL get through this. Take one day at a time. Draw strength from where you can. At times , even if you think you can’t , you can and you will get through this.
    It is a blessing that they found the aneurism now and not later.
    Please remember that there are people you do not know who are praying and rooting for you.

    #14794
    vancouverite
    Participant

    Many thanks for the responses to my latest post. The “good vibes” really do help!
    Saw the vascular surgeon yesterday and as was expected this aneurism must be dealt with as quickly as possible. But of course, more tests must be done prior to that happening. It would seem that I am a member, although unwillingly, of the “go big or go home” group.
    Because of the size and location of the aneurism, I am not a candidate for a stent implant, but must have open surgery for repair and the possibility of requiring a custom implant to allow blood flow to my kidneys. Surgery is tentatively scheduled for Feb 5, depending on test results.
    I thought waiting for TURBT results was a test of one’s stamina; but waiting with a bomb ticking in your belly takes it to a whole new level!
    Once again, thanks for being there.
    Bonnie

    #14795
    Zina
    Participant

    Hi Bonnie. I am so sorry to hear about the aneurism. Thank God they found it. The thing about membership in the Go Big or Go Home club, is they only allow the strongest, most resilient members in the group. I can tell from your attitude that you are as strong as anyone else in that club – even though I wish you didn’t have to be there. I will keep you in my prayers.

    #14796
    Jeanne
    Participant

    I am sorry you are going through all this, but not sorry that you had the right tests to show what needs to be done
    Sounds like you have a great doctor and team to see you through.And you have all of is here pulling for your healthy recovery from it all.

    Hugs , Jeanne

    #14797
    scubalady
    Participant

    wow, what an experience. will be thinking of you, best wishes as you go through this. AY yi yi!
    JL

    #14798
    Joanne
    Participant

    Hey Bonnie,
    It’s great that surgery is only two and a half weeks away.
    In the meantime, don’t sweat the small stuff, focus on only the important
    things, then be at peace and leave it in God’s (and your surgeon’s )
    hands.
    Try deep breathing and meditation to calm yourself. I know that advice is cheap but I really do wish you well.

    #14799
    KIOWA
    Participant

    Well, I’m with Greg. Well actually not “wish” him but once again in agreement with him. I know that is very scary. In any event fortunately they did the scan which they likely would not have if it were not for the cystecomy. They can deal with the aneurism and they will. In the mean time you have more time to think about the diversion type that is best for you. Since the cystectomy surgery comes awfully close to the AAA (no, not that AAA, you don;t need road service) you could have had blood flowing all over the place and that’s messy. That is not a pleasant surprise for a surgeon. Glad they discovered it.

    Kiowa

    #14800
    Joanne
    Participant

    Hi Bonnie,
    Wishing and praying for your successful surgery this coming Tuesday.
    Hang in there!

    #14801
    auntybevy
    Participant

    Hi Bonnie: I also wish you the best for Tuesday. I will be thinking of you and hope all goes well.
    Bev

    #14802
    Jeanne
    Participant

    I have been so badly out of touch. Hope you forgive me.
    Praying that all went well.

    hugs, Jeanne

    #14803
    vancouverite
    Participant

    As mentioned in previous post, the surgery for the aneurysm repair was scheduled for Feb. 5. Unfortunately no one thought to tell the aneurysm! An uneasy feeling sent me to the emergency room on January 25th,the vascular team was notified; and I was in surgery in a half hour. Certainly not the ideal pre-op situation, but I am most grateful to the Doctors and excellent staff at VGH for their quick response and excellent care during my stay.
    I am now at home and making good progress down the recovery road, although breifly interrupted by a bout with the flu. Found that more difficult to get over than the surgery!
    It has been astounding to me the amount of support, prayers and hugs that have come from all of you”BC’ers” to a “triple A’er”/ BC’er, I am most grateful!
    The icing on the cake was when I was surprised with a package containing a quilt with warm wishes from Bladder Cancer Canada. It is cherished; and everytime I think I can’t, I have a rest with it and think, Oh hell yes I can!These words are most inadequate, but THANK YOU ALL!
    Bonnie

    #14804
    Greg
    Participant

    Bonnie: Glad you’re home and recovering. So glad you took the initiative to go to the ER when you did. Hope your recovery continues to bring you to 100%. The journey ahead is now much safer.
    Blessings.
    Greg

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