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Homepage – Forum Forums Muscle Invasive Bladder Cancer Leakage at bag connector

Viewing 6 posts - 1 through 6 (of 6 total)
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  • #7875
    Kit
    Participant

    Dear all, just wonder if anybody could share the experience of how to make sure the connector between the ostomy bag and the night bag are perfectly installed.

    Kit.

    #15970
    KIOWA
    Participant

    Well, not having having to do that myself I can only suggest J.B. Weld or super glue or possibly duct tape. that being said, I really do wish you well. I know others on the site can provide much better advice (obviously).

    Kiowa

    #15974
    Kit
    Participant

    Thank you Kiowa. I guess I was just paniking at the early stage. I am hoping we will be okay with more practice. I also found the tube paste really helps to secure the base plate. My biggest concern now is that my mom had infection yesterday after I encouraged her for a short walk (at our backyard), infection is treated by antibiotics but now she blamed me and the walk! She refused to move at all and stayed in bed for 23.5 hours the whole day! Should I just take it easy and let her? But I cannot convince myself that not moving is good for her!!

    #15975
    KIOWA
    Participant

    well certainly do not blame yourself. And as for activity it is vital. Inactivity especially being in bed for long periods and lead to muscle atrophy, respiratory problems including pnemonia, and a variety of other p-roblems, especially bowl problems. I think she should be encouraged to be as active as she can be within her abilities. She may not understand it, but she will feel better. Of course when a person feels their worse that is when they need to be more mobile. You did the right thing.

    My best to you and your Mom

    Ki

    #15976
    Greg
    Participant

    Kit:
    The infection is something that almost everyone experiences at some degree of severity at some point in their recovery from an RC. Many on this site can attest to having one, including me. It’s no excuse for lying in bed and she needs to keep getting up, getting dressed and trying to make the best of feeling like she’s been hit by a truck. In no way did the walk start it or even contribute to it. You are her best friend and at some point she will appreciate it. So try to let her comments slide off and do not take them personally. She feels horrible at times, out of control, forever changed, emotionally raw and wondering with uncertainty about the future. She’s got a great future if she does the right things now, one of which is to get out of the sack and get her feet on the ground!

    She’s in early days yet and though she feels like it is taking a long time (it will), she will feel much better the more she walks and the more she can focus on others and not herself. If I had not gone through it, I would have no credibility. But I have been through it and can assure you it is true.

    You are doing a great service to her. Bless you.

    #15990
    Kit
    Participant

    Hi Greg, Kiowa,

    Thanks for your encouragement. Mom is still pretty reluctant to move although I have explained to her a thousand times, I will keep trying! At Sunnybrook we got all the nurses and volunteers (one of them is student physiotherapist and recommended a set of light exercises my mom can do) to help us and Mom would nod her head and promise to move and then will, like a child, refuse to do anything when there are no other people around! She does develop thrombosis and is prescribed blood thinning medication for a month. You guys’ words go give me the courage and energy to move forward!! Thanks again!!

    Kit.

Viewing 6 posts - 1 through 6 (of 6 total)
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