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LETTER OF INFORMATION
Health Quality Ontario is conducting a review of intermittent catheters for people who have bladder-emptying
problems due to various health conditions and who may have experience with intermittent catheters. The
purpose is to understand whether this treatment should be more broadly funded in Ontario.
An important part of this review involves speaking to individuals and families of those who have experience
with intermittent catheters (type [hydrophilic vs standard], routine [single-use vs multiple use], access, cost,
safety, self-catheterization vs use with the help of a care provider). Our goal is to make sure the experiences of
individuals and caregivers are considered in the funding recommendations for this procedure.
WHAT DO YOU NEED FROM ME?
✓ 20-40 minutes of your time for a phone or in-person interview to share your story
✓ Permission to audio- (not video-) record the interview, if possible
WHAT YOUR PARTICIPATION INVOLVES
If you agree to share your experiences, you will be asked to have an interview with Health Quality Ontario staff.
The interview will likely last 20-40 minutes. It will be held in a private location or over the telephone. With
your consent, the interview will be audio-taped. The interviewer will ask you questions about you or your
loved one’s condition and your perspectives about intermittent catheter (catheter type [hydrophilic vs
standard], routine [single-use vs multiple use], access, cost, safety, self-catheterization vs use with the help of a
care provider) options in Ontario.
Participation is voluntary. You may refuse to participate, refuse to answer any questions or withdraw before
your interview. Withdrawal will in no way affect care you receive.
CONFIDENTIALITY
All information collected for the review will be kept confidential and privacy will be protected except as
required by law. The results of this review will be published, however no identifying information will be
released or published. Any records containing information from your interview will be stored securely.
RISKS TO PARTICIPATION:
There are no known physical risks to participating. Some participants may experience discomfort or anxiety
after speaking about their lived experience. If this is the case, please contact any staff.
If you are interested in participating, please contact Health Quality Ontario staff:
Sunita Kheterpal or David Wells, Patient, Caregiver and Public Engagement
(Toll-free) 1-866-623-6868 x 110
Sunita.Kheterpal@hqontario.ca
David.Wells@hqontario.caJust to say that I responded via email to the contacts and completed a survey yesterday afternoon. As a now almost 5 yr Bladder Cancer Survivor (Stage 2), and the recipient of a neo bladder, I find that I need to self cath daily to be sure I have emptied my neo. I had received a grant from the Ontario Assistive Devices program, which lists a Radical Cystectomy as one of the eligible surgeries. Then I had to re-apply after a year or so, and lost funding. When my catheter use increased earlier this year I re-applied and was again approved, and I now receive two cheques a year towards the cost of my catheters and gel. Our insurance does not cover this cost, so the grant is helpful. I believe that neo recipients should qualify, as the cost of catheters, and protective underwear and such can easily add up significantly. I recently switched to coude tip catheters, and the cost at my local supplier was extremely expensive. I found a different supplier online, which was significantly less, and on par with what I had been paying locally before switching. If one were on a low or fixed income, these supplies would require a significant investment. So take the survey and share your experience, and perhaps the government will expand the program to include neo recipients.
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