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My mother-in-law- has just received an Ileal Conduit on Mar. 18 and is now home.
but she can’t make it through the night without major leakage. Any ideas?I haven’t had my bladder removed but I’m sure that you will hear from others that have on here shortly. As a suggestion though, Have you contacted the nursing staff for assistance to make sure that she understands how to use all the “equipment”? Leakage is a problem for some I’ve heard but maybe the hospital or in home nurses may have some tips?
I can’t answer your question directly however I can tell you that this is a typical problem especially just after the surgery. BUT- it IS resolvable. It takes a little time and a little trial and error. Don’t despair. It takes time for the ileal to heal and in the mean time it changes shape so leakage is common until the ileal is fully healed. It also makes a difference as to what product you use. It will get worked out. And it is definitely better than cancer. Hang in there.
Thank you Mary sue and KIOWA, We have been in contact with the nursing staff and they are coming to check on it tomorrow. Mom knows how to use the appliance so it might just be time that she needs, the nurse that was here yesterday said it was the location and the previous one said it was her incision that was causing, too many conflicting answers. Hopefully it’s just time. But your right …cancer free is a better way to be.
Inlaw:
So how did your mother-in-law make out with the nurse? Any definitive answers to the leakage issues? Remember that it is early days yet and, even though I have a neo-bladder, I still experience occasional “leakage” issues and I am two years and four months post-op. Seems to go with the territory in the early going.Greg,
The nurse changed the flange and added tape, but before she left mom was leaking again so she had her change the flange along some “Eakage” and do it in a sitting up position. So far we only have minor leakage. Tomorrow the staples come out 🙂Inlaw:
The link below will connect you with a volunteer group of people who live with ostomies of various sorts, including for urinary diversions. There may be information on their site that could prove helpful in your mother-in-law’s circumstances. They also have a newsletter/magazine available. All the best.
GregDear lnaw
The leakage issues go away, as you become more furmillure with the appliances .l found as l accepted that there would some lecks the more relaxed l became. Within 8 weeks my stoma changed almost 3/16 of inch.Then I also
changed the applances the hospital had given me to use.All the suppliers will send
you FREE product to try.l’v had my bag buddy since April 18/13.Over the past five
months the very best l’v gotten out of a fresh change is seven days.I have had lecks
at the gym, at work and in the middle of the night.I accept this is now part of the price l pay to live cancer free.
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