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IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

Viewing 5 posts - 1 through 5 (of 5 total)
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  • #8207
    fighterm
    Participant

    Hi, I am new to this site. I have a B cell lymphoma that started at least 23 years ago, it relapsed several times. I was having regular CT scans for it and that’s how they saw a tumor in my bladder. Actually, it was there on several scans, but they did not notice it until last October. So I had my first TURB at the end of January after I completed my chemo for lymphoma. Now I do two maintenances, for lymphoma and for the bladder. Fortunately, my cancers are treatable, so I am good.

    #18782
    marysue
    Participant

    Hi fighterm!

    Welcome to our site even though I’m sure you wished you didn’t have to be here. You have quite a challenging life. What was the stage and grade of your bladder cancer ? Are you doing BCG as part of the maintenance treatment? You sound positive which is key to handling cancer of any type. Don’t hesitate to ask questions. There are lots of us on this site that have travelled different roads and their experiences are invaluable. Best Wishes and stay in touch. (((((HUGS)))))

    #18783
    Babs
    Participant

    A big welcome to you. Sounds like you can teach us a lot about dealing with a chronic condition. Sorry you had to face bladder cancer as well. But as you said, it’s treatable.
    We have a great bunch of bladder cancer survivors in Edmonton who are committed to making a difference by raising awareness about Bladder Cancer, holding a support group & fundraising to support research & Bladder Cancer Canada. Our support group is held in the evening on the fourth Tuesday of the month. There is a wealth of experience in that room. If you’d like info about the group or volunteer committee, please don’t hesitate to contact me.
    Bette

    #18788
    fighterm
    Participant

    Thanks a lot for your replies. The stage and grade are non-invasive, low grade. But my pathology report also says NO DEFINITIVE EVIDENCE OF DEEP MUSCULARIS SAMPLING. What does it mean? That it can be invasive if they took samples deeper? Poor sampling? I hope that my next scope in May will clear this up for me. My bladder cancer was most likely be the result of chemo (cyclophosphamide is the usual suspect) and radiation on my groins.
    I did not get any BCG or mitomycine, but was told to come for check ups every 4 months for 2 years. And I get chemotherapy for lymphoma every 3 months for 2 years. I am not worried at this point. Everything is under control. Thank you again for your support.

    #18790
    Jack Moon
    Keymaster

    Hi fighterm

    Sorry you are having to battle 2 cancers. I suggest you ask your Urologist to explain “No evidence of deep muscularis sampling” Usually what I see on many members pathology reports is “no muscle present in sample”. Which if the cancer is high grade, another Turbt is scheduled to insure the tumor did not reach the muscle. You being low grade the Uro might opt to just do another scope.
    I wish you all the best,
    Jack

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