DDep gets First Pathology report needs input/advice

[DDep]

I just wanted to share the state of affairs to date:

I had a 4.5cm X 3cm Tumor identified in my Bladder in June.
July 3, cystoscopy – Tumor appeared like a “coliflower” attached to my bladder at its base by a “stalk”.
July 22, I had the Tumor removed – TURBT.
July 24, CT scan of my body.
August 11, my Urologist called me at work and left a message giving me the results of the Pathology report. Follow-up TURBT with Urologist to come.

Today, I visited my GP for related issues and he provided me with the Urologist/Pathology report as well as my CT scan report. Here is the report:

QUOTE///

Overall the pathology is favorable given the size of the primary tumor was reported as follows:
1. Bladder tumor base, transurethral resection:
– LOW GRADE PAPILLARY UROTHELIAL CARCINOMA
– No invasion into the lamina propria
– Muscularis propria is present
2. Bladder tumor, transurethral resection:
– Focal HIGH GRADE PAPILLARY UROTHELIAL CARCINOMA
– No invasion into the lamina propria
– Muscularis propria is absent

Abdominal inaging demonstrated no metastatic disease to the regional lymph nodes and only expected post procedure bladder thickening. CT scan of the chest demonstrated no evidence of metastases.

My plan (Urologist) is to re/re resect the area to confirm no residual disease and no muscularis invasion due to the very large size of the primary tumor. We (Urology) then can proceed wih intravesical BCG.

///UNQUOTE

So, it looks good so far. Can I have any comments. The Urologist wants to go in again. How concerned should I be? Have others had similar second TURBT’s?

Thanks

[Jack Moon]

Hi Dep

So far is good! It is routine for the Uro to do a 2nd Turbt to the area that was high grade, but with no muscle in the biopsy sent to the lab.
This is a standard pre-caution just to be sure the tumor did not invade the muscle.
So far your stage is TA, Grade high grade. The gold standard treatment for this stage and grade is BCG treatments.
I had BCG treatments and have been cancer free since 2007.
Wishing you all the best going forward.
BCG = Bladder Cancer Gone
Jack

[cheryl9]

Hello

I am in month 16 of my journey. Three operations (TURBT) currently on my fourth round of BCG. My prognosis is good. This is just how things go with BC.

Your primary tumor sounds a lot like mine other than mine was smaller (3 cm). I also had numerous superficial tumors on the left orifice with the first surgery. So far, every cystoscopy has had more tumors and only twice could the tumors be removed during the cystoscopy. The other times required surgery. This is all starting to fit into a routine ad I no longer go bongers about it each time.

Recurrence is very common so don’t be scared of this. The start of the journey can be absolutely nerve wracking. What helps is to be informed but also trust your urologist. Research your urologist on the internet to find out what you can about them. This can really help the trust element.

Do you have family/close friends you can talk to about this? This can also help.

Didn’t mention if you had that “wonderful” catheter after surgery. It isn’t always necessary. I had catheter twice. I was thrilled to no end the third time when there wasn’t a catheter. You also learn to appreciate the little things.

In the end, sounds like your urologist plans to be a step ahead and this is a very good thing.

Take care

[Author]

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