COST AND AVAILABILITY OF SUPPLIES FOR ILEAL CONDUIT
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Homepage – Forum › Forums › Muscle Invasive Bladder Cancer › COST AND AVAILABILITY OF SUPPLIES FOR ILEAL CONDUIT

Viewing 4 posts - 1 through 4 (of 4 total)
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  • June 22, 2017 at 12:54 pm #8513
    Bub
    Participant

    Hi everyone. After two turbts and 2 years of BCG treatments it seems that the cancer is still in my system. I am otherwise a healthy 70 year old.
    With much thought and discussions with my wife and my doctor I decided to go with Ileal conduit. Waiting for date for surgery.
    Can anyone share the costs and availability of supplies for the future?
    Also I live in Alberta does anyone have any info if the province offsets the cost of supplies or if Blue Cross old age does
    Thanks very much.

    June 30, 2017 at 5:42 pm #21754
    Babs
    Participant

    Hi Bub
    Sorry I missed your post earlier. Albertans are fortunate that Albertans have the AB Aids to Living Program to assist with catheters and incontinence suppliers. It is a cost sharing program but seniors can apply to have the cost sharing waived. You can go to their website to find out more.
    I do not have an ideal conduit myself so can’t comment further. You may find it helpful to speak directly with someone who is living with this device. You can call the Bladder Cancer Canada office and they will connect you with a peer support person.
    I help run the Support Group in Edmonton. Some of our participants found it very reassuring to talk to someone who is experienced with this device before they had their surgery. They have been reassured to learn they can do their previous activities-swimming, golfing, travelling, working, golfing, etc.
    Also, they learn tips to mananage in the best possible way.
    When you have your surgery, the nurses will be very helpful in teaching you how to care for it and where you get supplies.
    Good luck to you. Please post any other questions that come up.
    Bette

    June 30, 2017 at 10:52 pm #21757
    Tom M
    Participant

    Hi Bub

    I’m also sorry I missed your posts earlier. I had my cystectomy over a year ago after following a path similar to, but much longer, than you have been through.
    The post from Babs in Edmonton spells out quite well the cost of ostomy supplies. It can range from nothing to quite moderate in Alberta. Living in the south of Calgary, I chose to use the Co-Op Health Care on McLeod Trail and they are good.

    You will find that the Ostomy nurses at Rockyview are great. They will help you choose a supplier and arrange everything for you – including home delivery if you require it. That will all be done as part of the cystectomy path which will begin at Rockyview’s Pre-Admission Clinic a week or so before your surgery.

    If you would like to talk about the procedure, recovery or ‘life after’, please feel free to send me a private message. I would be pleased to help in any way I can.

    With support,

    Tom

    July 7, 2017 at 9:10 pm #21765
    Bub
    Participant

    Thanks Babs and Tom for your replies. They were very helpful. I am anxiously waiting for my surgery date

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