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Homepage – Forum Forums Non-Muscle Invasive Bladder Cancer Chronic Pelvic Pain Syndrome (CPPS)

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  • #8048
    EddieM
    Participant

    Back in July of last year I had my first cysto follow up with great results, and so far they continue in that direction. My uro out of Sunnybrooke (a.k.a WonderBrooke as I call it) diagnosed me with CPPS or Chronic Pelvic Pain Syndrome. He believes that is the cause of my sporadic irritation and burning sensations when voiding.

    I had been experiencing the same symptoms prior to my BC diagnosis for years (5 at least) and it was the initial reason I went to the doctor in the first place when it became much worse and regular, only to find hematuria.

    That all said, who else out there has been A) diagnosed with CPPS and B) had multiple instances of irritation, years prior to your BC diagnosis?

    Curious minds want to know….I want to know.

    #17231
    KIOWA
    Participant

    Sorry to hear about that Eddie. I use to have chronic cystitis with burning and pain and it sure is miserable. I haven’t heard about chronic pelvic pain in a long time. Now that you mention it though I wonder if my spinal stenosis which is causing serious pelvic pain is related to some minor burning I have been having.. I’ll ask my doc about it.

    Ki

    #17234
    scubalady
    Participant

    Yikes, Craig had surgery for Spinal Stenosis last summer. is doing well, some minor pain but nothing like the shooting pain and numbness he had before. was worried that he’d have permanent nerve damage if he didn’t get it fixed, and was fortunate that it was operable.

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