skip to Main Content
BCC_Discussion-Forum-Page-Header-new

IMPORTANT: The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.

Homepage – Forum Forums Muscle Invasive Bladder Cancer Appropriate Follow up after Radical Cystectomy

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #7699
    Mollygolly
    Participant

    Hello All!

    Just wondering what the standard/usual procedure is for follow up after RC. My urologist has booked me for a CT scan in February. That will be my first 6 month check up. He mentioned to me last August that he thought after my first scan I could move to yearly. I have to say I am a little apprehensive about that given the nasty nature of high grade bladder cancer. I know of others who had the same type/grade T1G3 and CIS who had recurrence after RC. Also wondering if others have had a full body scan or just the abdomen/pelvis. What about urine cytology or checking kidney function etc. I am not comfortable moving to yearly after my first scan. I thought is was supposed to be every 6 months for 2 years and then move to yearly.

    #14896
    marysue
    Participant

    I suggest contacting Greg Neeley on this one. He does all kinds of follow ups for various things and is well versed.

    #14897
    Greg
    Participant

    I had a CT at six months and one year and then my uro booked me for a year following that. One of the concerns with CT scans is the high radiation involved and as we know, radiation can cause…cancer! So it is no doubt a balancing act that they perform – wanting to detect cancer without actually causing it. I think each centre and maybe even each uro-oncologist has their own protocol. There seems to be no consistent regimen followed across the country or even from cancer centre to cancer centre. It was an issue discussed in a CUA meeting I was privileged to attend a couple of weeks ago.
    I had T1G3 which progressed to T2bG3 necessitating my RC. Also had CIS in all the wrong places! Yet here I am post RC by two years, one month and 12 days – but who is counting? – and as far as I know I am the healthiest guy I know! I have only had the pelvic scan, usually with dye injected along with a chest x-ray, though why they cannot dispense with the chest x-ray and just move the CT a little higher is beyond me. But since I am an insurance guy and know little about medicine, I tend to put a great deal of faith in my doctors. If I did not, I would change doctors. One of the benefits of being cared for at a major cancer centre is that I know they have done this once or twice before — this week!
    All the best.
    Greg

    #14898
    Mollygolly
    Participant

    Thanks for the info Greg. I have heard that too about CT scans causing cancer.

    #14899
    KIOWA
    Participant

    radiation can cause cancer? Nooooo. No way!

    #14900
    Bruce
    Participant

    if you have any signs or symptoms you can talk to your Urologist or the office and they will have appropriate follow up times. I was suppose to have 6 month scans instead of 3 month and because of the issues I ended up having CT on Monday instead of May.

Viewing 6 posts - 1 through 6 (of 6 total)
  • You must be logged in to reply to this topic.
Back To Top