Hi Gord,
So great to read you are doing well. I am 8 weeks post RC with neobladder by Dr. Shayegan and things are going great for me. I just had a follow-up appointment with Dr. Shayegan and we discussed low residue diets.
I had read about metabolic changes due to removal of a portion of the ileum and found that I was not experiencing any of these issue. I also had a copy of Dr. Shayegan’s notes on my surgery and learned that he did not remove any portion of my terminal ileum. I believe this has helped me being able to eat the foods I like (fruit, vegies, fiber) and not worry about how it is digested. Dr. Shayegan agreed that eating a regular diet is fine. I agree that was good to be cautious with certain foods for the first few weeks to allow for healing of the ileum.
Each surgery may be different – when you visit Dr. Shayegan next, have him explain what portion of the ileum he took. I have a Studer Pouch – and for me, they went in 25cms from the termination of the ileum then removed 60cm to create the neobladder.
If you have any questions, please do not hesitate to contact me. nickerson.dw@gmail.com.
Dawn
