Hello all. Just a quick note as I said I would post Tim’s results. We saw Dr. Shayegan. Not what we expected. Tim has a rare small cell bladder carcinoma. He will be having scans done of brain, bone, liver, lungs. We will be given appointment at local cancer centre and he will start heavy chemo soon. That is all we know. We are heartbroken, grief stricken and in shock. I am terrified and fighting off panic attacks. I think a little hope would help us calm down – we did not get any at the appointment. I know this now goes beyond what this site and forum are designed to address, but if anyone has any hopeful or inspirational stories they know of someone they may know who has this -unlikely I know, as the doctor said it is like a 3% type — I would greatly appreciate it.I am too afraid to research this on the internet right now. Dr. Shayegan said something about a 50% survival rate and I don’t even know what that means. My two pages of questions about neobladders stayed in my purse as they are not even considering surgery now. Wish this update was different. Appreciated your posts.
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