Keith, not sure if what I experienced was what you are describing, but I experienced not just shakes but freezing cold and then when the meds I took for it kicked in, oppressive heat and night sweats. It only ever happened at night but it went on EVERY night for a few months. I thought I was going crazy and wondered if it would ever remedy. It finally did, though I still cannot sleep under a comforter without waking soaking wet – and not from the neobladder but from sweat. I did experience infection about seven weeks post RC but that was resolved with Cipro. These started following that. Hopefully it will not happen again, but if it does, I found that a couple of Tylenol took away the shakes. Of course, I then had to deal with a body that thought it was in a sauna…Hang in there man. It’s a new normal and it takes a lot longer to FULLY recover than one should think it would.
Greg
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