Hi Bonnie. Sorry to hear you have this decision to make. Like Magnum, my health twin, I have a neobladder and am celebrating my second anniversary with it on December 15. I will not be getting it a present, but am delighted to share a very good life with it in my ” new normal.”
I had T1G3 for over two years and did not want a radical cystectomy at all. But when my cancer progressed to T2G3 I did not have a choice. Men seem to do well with neobladders and many women do as well, though there are sometimes issues to deal with as a woman that men do not have to worry about.
Is Dr So recommending one diversion? Many women seem to opt for the Indiana Pouch; it does involve catheters each day, but is an internal pouch. I know Zina on this site can give you the low down on that diversion. She is delighted with her choice. But sometimes you are best to go with the doctor’s recommendation if he is making one. He knows your history the best and knows what is the best option from a surgical point of view for you.
Know this: Life is good. And Magnum is not as normal as he likes to think he is!
Greg
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