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Hi Marysue
I really appreciate your response and explanation of this. I have since done a lot of reading on it..there is some good, reliable information out there..considering this is somewhat of an oddity!!.. I am having another surgery on January 9th in Edmonton…he just wants to take another scraping, and all that. Then wait 2 weeks for the path report. So I guess we all will have a decision or two to make at that time. I appreciate your thoughts and recommendations of “getting through the BCG”…but all honestly be told…If I am going to endure any suffering/discomfort it is going to be in the fact that I will not have to worry about anymore “recurrance”…I would just as soon face reality sooner than later. It’s like prolonging the inevitable!!! So on December 10, that will be the very last of BCG ever ever again!!!!!! We did spend a lot of time talking about the RC surgery…and yes by no means is it an easy surgery to endure….I have already had a hysterectomy..so that part is done with and over…and I lived quite comfortably getting rid of that pain and pain it was!!!! Now..the same with the bladder..if it’s do-able to live without..do it…is it easy..no…there will be many trials and tribulations with the recovery process and the coping skills to learn how to live the rest of your life with a bag…but I have grasped that concept more easily than having to deal with the worry of a reocurrance of the cancer coming back into the bladder. My thoughts ..if the cancer is just contained to the bladder..why give it or yourself that chance of it coming back or going somewhere else…that is not living cancer free in my eyes!!! Just get rid of it..and then deal with the consequences of living without it…but living cancer free!!!!!!!!! So I guess I have my mind in a place where if the surgery..RC..is the best choice…I have already got my head wrapped around that concept!!..and it’s not such a huge surprise after all.