Homepage – Forum › Forums › Muscle Invasive Bladder Cancer › RC longer term issues – Would you have wanted to know? › Reply To: RC longer term issues – Would you have wanted to know?
I remember when Craig got diagnosed (and doc wanted to do RC). I asked about talking to someoen who had already done, they had no way to do/allow that. confidentiality blahblahblah. Found BCAC (this was B4CBCAN) and Craig and I talked to Keith and JJ. It was incredibly helpful, and they could give a perspective his doc could not. This site is invaluable for that contact. So in addition to providing a lot of information, health care providers should be helping patients find this kind of contact. I think i understand his misgivings and concern. there is mis-information as well as help on some boards. (not here!). But talking to someone who has been there is so so important.
Jackie