Rick, I too am sorry to hear that you are now in need of an RC with a Neobladder, like Greg I am coming up on two years on November 03, yes it is scary, but trust me there is light at the end of the tunnel. Unlike you I did not know of this wonderful forum then, but was given 3 other neobladder patients names to call. This made all the difference in the world, just knowing you are not alone and that there is life after the surgery, this was the biggest hurdle to overcome. As Greg states there are issues and setbacks, but none that can not be rectified over time. The first few weeks are the worst and as with anything new you need to walk before you can run, but it does get better much better. Like Greg please feel free to contact me, there are no subjects that cannot be addressed and so don’t be ashamed or afraid to ask, my pride went out the door in surgery. Please ask questions before and don’t be afraid to call after your surgery as things will come up that only someone who has experienced the same can relate to.
Personally I basically live my life as before, just turned 59, life is good.
Al
