Homepage – Forum › Forums › Muscle Invasive Bladder Cancer › Radical Cystectomy longer term issues › Reply To: Radical Cystectomy longer term issues
Okay – I will chime in as well. I am a newbie. I had my RC July 12 with Ileal Conduit. I am back at work almost full time. I do suffer from low energy but it is improving. I have had no problems with skin irritation, infections around the stoma or kidney infections. So far so good. Downside – having a leak at work. That happened to me today. I have supplies at my desk. I was wearing low waist pants and sometimes that’s not a good idea because it pushes the.. ahem… contents of the pouch up higher and puts pressure around the flange area. At least I think that’s what happened. Maybe I had a faulty pouch? For the most part, I have not experienced any problems with leaks. I like the night drainage bag because I can sleep through the night but also I worry about it coming apart or twisting the tubing and blocking the flow. That actually happened to me shortly after I got home from the hospital. I woke up in the morning and my pouch was full and nothing was in the night drainage bag. I was scared that urine must of backed up in to my kidneys. Yikes!