Like marysue, I’m interested in what kind of diversion involves what sorts of long term consequences.
I had an ileal conduit surgery one year ago. For me, everything is back to normal. Energy level, bowel function, general feeling of well being is as it was before the surgery. (I never did feel sick at all with the bladder cancer. Even the BCG treatments had no discernible side effects for me. Increased episodes of CIS despite resections and BCG treatment led to the RC recommendation). I have experimented a bit with one piece vs two piece urostomy pouches, but haven’t had any real problems with skin irritation or leakage.
The most inconvenient long term after-effect of ileal conduit surgery (to me so far) is the nuisance of the night time collection bag that is essential if I’m going to sleep through the night. On the other hand, I should be pretty darn happy that I do sleep through the night, I think!
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