Hi Marysue,
Thanks for all your suggestions. Originally I was seen by 3 gynecologist, interesting none of them knew what was going on, they referred to me an urologist. I am not in menopause, so yes, not only am I to lose my bladder but a hysterectomy (menopause) and some external excision(s). I was told (and seen) research from Princess Margaret on brachytherapy and this type of rare cancer but the study sample is quite small. It would be great to hear from a “real” person who under-went this type of radiation from that hospital, that’s what I was hoping through this site and the contacts here. Thanks again.
Diane
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