I had BCG once but it made me so sick I decied I would have nothing furtehr to do with it. As it turned out it didn;t work anyway. Whhcih is good becase no way was I going to keep doing it. I do recall my doc telling me he as a time frame for BCG and I believe it was such that it did not go over 12 or 18 months. There is still a lot of flux around the BCG matter but I would say if you really trust your doc and you stay free of BC thre would be no point in contiinuing. Others, as you know, have continued for long periods. One thing I find missing in the research is a clear comparision of whther those who stay on stay clear and those who do not stay on BCG may get more relapses. This kind of comparison would be be very difficult to do and the number of sample would be very low, thus the research really is silent in this regard. So my thinking is that we really don’t known. My doc’s position is that most people give up on BCG so he wants it to work and get it done and over with in a reasonable period of time. His own findings are that it likely does not help to stay on it for years. I personally would tend to agree with your doc on this. Keep in mind that BCG and BC are highly variable and there are a number of different thoughts on it. I for one would not do it for more than a year or so even if I could have done it. My doc’s concern is that many people get so tired of the BCG they just quit it and also quit seeing their doc for follow up and he sees that as a bigger risk than continuing long term BCG when it may not actually be achieving anything. I am glad I at least tried it but BCG is not my favorite thing but it is about the best treatment for low stage BC.
Kiowa
