IMPORTANT INFORMATION:
The Bladder Cancer Canada discussion forum is not a substitute for professional medical advice or treatment. The opinions & contents in this forum is for information only and is not reviewed by medical professionals. They are experiences & opinions of patient members like you, and is NOT intended to represent the best or only approach to a situation. Always consult your physician and do not rely solely on the information in this site when making decisions about your health.
DISCLAIMER:
This is a public forum, therefore all content posted in the forum will be visible to the public.
KEY Topics.
- Support & Education Town Hall – Wed June 11, 2025. In-person at McMaster University in Hamilton (free). Click here
- We have 11 Monthly Support Groups, including a women’s only and a Caregiver’s Group. To explore & join – Click here
- Also, check out our Upcoming Meetings & Events Page for the latest information. Click here
- Rare form of Bladder Cancer? – Please click here to review & post.
- Can you be REIMBURSED for Ostomy supplies? – Click here to find out.
Register for this free service so you can post questions as well as share your experience. Hundreds have found the Forum to be very valuable. Moderated by experienced Bladder Cancer survivors.
To view in French, click on the language window at the top of the page. The translations may not be exact as we use a free service to keep our cost down.
Note: Your Identity is kept confidential.
TIP: You can narrow your SEARCH by typing in more words in the search window below. Example: BCG high grade cancer; or you can select a topic below. Lastly you can examine the most recent postings by clicking RECENT ACTIVITY in the BOX on the right.
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Instructions On How To Use The Forum
**Please review instructions on how to use the Forum first, before posting**
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Longer term Bladder Cancer Patient
This category is for posting your question or comment if you are a long term (7 years or more) bladder cancer patient. The cancer could be low grade or high grade, non-muscle invasive or muscle invasive. You might also have undergone a radical cysectomy and now have a divergent.
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Patient Surveys and Studies
Bladder Cancer Canada often needs patients and caregivers to participate in studies and surveys to help advance research and improve outcomes for future patients. Details about the current studies/surveys will be highlighted in this forum.
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- 9 months, 1 week ago
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2nd Time Around with Bladder Cancer
You have been diagnosed with Bladder Cancer years ago and had treatment to remove the cancer and now years later it’s back. If this is you, then go ahead and post your situation and/or questions.
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- 3 months, 3 weeks ago
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Newly Diagnosed With Bladder Cancer
You have been referred to see a Urologist by your family doctor, because tests such as a ultrasound showed a mass in your bladder, or you may have a positive cytology from a urine test.
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- 1,287
- 1 day, 16 hours ago
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I May Have Symptoms Of Bladder Cancer
You may have seen blood in your urine, or other signs such as groin pain, and urgency. Ask members what they did when they had these symptoms.
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Upper Tract Urothelial Carcinoma (UTUC)
Once considered a rare form of Bladder Cancer, UTUC is occurring more frequently. Enter your post here if you have been diagnosed with it.
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- 2 weeks, 6 days ago
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Bladder Replacement Options
This Category is a good place to post your questions and/or comments about Bladder Replacement options.
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- 7 months ago
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Non-Muscle Invasive Bladder Cancer
You have been diagnosed with non-muscle invasive bladder. Great place to ask ask questions and share your experiences.
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- 3 weeks, 3 days ago
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Muscle Invasive Bladder Cancer
Questions and comments specific to muscle invasive bladder cancer.
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- 3 days, 15 hours ago
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Caregiver Support
Questions caregivers may have regarding how to cope with a relative or friend that has been diagnosed with bladder cancer.
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- 7 months, 2 weeks ago
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Inspirational Survivor Stories
These stories are intended to give you a ‘view’ into the bladder cancer journey taken by people from across Canada. If you have such a story to share, please tell us about it – you may give someone the hope and motivation they need to fight this cancer and win!
Important Note: The people who contributed their stories are in all cases unreachable and don’t monitor this site. Therefore please do not post a question to them.
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- 6 months ago
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Metastatic Bladder Cancer
Questions and comments specific to Metastatic Bladder Cancer.
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- 9 months ago
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Monthly Treatment Calendar
Post your upcoming treatments and procedures along with your results. Do not post questions in this topic, use the other available topics for your questions or concerns.
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Research, Clinical Trials, and New Treatments
Updates on research, progress on clinical trials under way and reports regarding new treatments on the horizon.
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- 6 months, 2 weeks ago
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Raising Awareness
Ideas about raising more awareness about the possible symptoms of bladder cancer. Notices of upcoming patient conferences and patient support meetings. Raising awareness about Bladder Cancer Canada.
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- 2 years, 1 month ago
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Off Topic
Here is where you can post items and discussions that do not directly relate to bladder cancer, this will be the area, to have some fun, relieve stress, suggestions for the discussion board, endless, please enjoy
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- 3 weeks, 1 day ago
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Support Groups in Participating Cities across Canada
In addition to the online Forums, there are monthly In-Person Support Groups in certain cities across Canada. These In-Person support groups are for Patients interested in meeting other Patients in-person, to discuss their situation and share their own experiences. Click on the following link to be taken to the In-Person Support Group site to review the details by city. https://bladdercancercanada.org/en/get-support/
- Note to Support Group Facilitators: Please feel free to post information in this Forum, specific to your City’s In-Person Support Group. Thank you.
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Instructions On How To Use The Forum
